Matthew routinely selects a book for us to read to him. He walks over, hands the book to us, then climbs into our lap. How can you say no to that?
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
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March
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- The Greatest Helper
- After a long day
- The Drive Home
- Uh, not much help from the G.I. doctor
- Not so good weekend for Matthew :-(
- GI Doctor Update
- A Beneficial Side Effect
- One Year Anniversary
- Trip to Beaver
- Quick update until Mike gets some pics up
- Men at Work
- Shameless Jealousy
- Bedtime Stories
- Back on steroids again... oy vey!
- For Those About to Rock!
- The Little Rocker!
- The Emerging Escape Artist
- The Little Dreamer
- Grandma's Visit
- Happy National Reading Week!
- Complete Concentration...
- The Tissue
- KUDDO'S TO CASEY!
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March
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5 comments:
Matthew has a great love for books. When he picks the book, he listens intently to what you are saying. He likes to turn the pages, so sometimes the story sounds a little strange to the disinterested listener; but it all makes sense to our little hero.
It looks like Matthew tracked mommy down in the kitchen for his bedtime story. I think it is great this is such a color coordinated family. Mommy dressed in her "Frederick's of Flannel" jammies was ready and willing to plop down on the floor for this important event.
Life with Matthew is good!
Love you two! grandma wright
Ah yes.... aren't they hot!!!!!!
I had to wear my Fredrick's Flannels b/c this is a G rated blog!!
Ha ha!!!!! They are quite comfy and warm though!!
Very sweet pictures. Those jammies do look very comfy and warm. Good thing this blog is rated "G"! ;-)
I LOVE jammies!! So cozy.
I also love storytime. I can't wait until my boy enjoys it. Right now we kind of force it on him because we dig it. =)
No, you never say no to that...And those PJ's are to die for!
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