After removing his coffee soaked clothing, I put Matthew in his playpen while I cleaned up the mess.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
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February
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- Standard Baby Faces
- The Face
- If it's not one child...
- Baclofen seems to be working!
- Early morning pre-op
- Post-op
- Have you ever been this tired?
- Endoscopy update
- Endoscopy today
- Quick Baby Surgery Update
- Matthew's test results
- Mason Manning in surgery NOW
- Lincoln Carter getting a heart transplant tonight!
- Endoscopy scheduled
- Happy Valentines Day
- Matthew's Gastric Emptying Study
- Another test tomorrow
- The Las Vegas Coffee Party!
- He's in the Jail House now...
- Inseparable...
- Pious or Ghostly?
- A Head Above the Rest
- A special week to recognize people born with heart...
- Matthew's portrait
- Baby Mason Manning is born on Feb. 7th
- Just in case you Wondered...
- Home Improvement
- The Carnivor
- The Daredevil
- The Button Pusher
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February
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4 comments:
He is rarely in this thing...
it's mainly used in front of our entertainment center to keep his hot little hands off all the buttons, knobs and dials on the console.
"If you do the crime, you must do the time." On Saturday morning Matthew took his daddy's coffee cup into his bedroom and managed to unscrew the top. Well, story has it that was only the beginning of the saga. After pouring coffee all over himself and the floor, he managed to play in it and even walk through it leaving little footprints with each pitter pat around the room. (snicker, snicker)
Why rumor also has it, Matthew was quiet as a little church mouse giving "no hint" of the creativity that was taking place. Isn't that just like a little kid. The dead silence is always the "big giveaway".....
I see repentance written all over our little hero's face, don't you????? Hee Hee
I'm just glad it was daddy's coffee cup and not mine.....
Congratulations on getting th cap unscrewed, and I know you learned your lesson.....sure.......Love you sweet baby, grandma wright
I feel for you guys. The day before Christmas stupid Daddy (aka me) placed a coffee mug on top of a new kitchen set we got Ali. Daddy somehow thought she stopped growing at some point in time and her arms would never reach the top of the new kiddy refrigerator. Well I was proven wrong and she dumped a whole white chocolate mocha on the nearly new and somewhat light colored carpeting. The carpet is still stained, and fortunately she managed to miss herself entirely (other than the desire to walk in the spilled coffee). Moral of the story, kids grow up faster than I care to think about and man they have long arms.
awww. He is darling! This is my first time to your blog. I'm enjoying myself!!
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