This is how the poor little guy has looked for a couple of days. The steroids that help the inflamation in his lungs make him just miserable. He hasn't slept in a couple of days.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2009
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May
(26)
- Almost finished w/ the steroids. THANK GOD.
- A couple pics from the past couple days
- Just got home from hospital ... all hooked up to o...
- Not a good night last night for Matt and Mike
- Here it is... the shot we all dread in the hospita...
- Face of an Angel, Heart of a Soldier
- More strolls around the halls
- I just love this!
- The Elephant Mask
- Even the lion needed a breathing treatment today
- Matthew is very proactive in his care
- Reading Time
- Matthew finally gets out for a walk in the halls
- Mommy's sick too!!
- Sunday Update
- Just got home from hospital. Mike just got off wo...
- Couple of smiles today :)
- Dr. Seuss helps too!
- Vibrating Chest Vest
- Matthew Update
- Gwenna is an angel
- Charlotte's Web video has captured his attention a...
- Finally... a very short nap.
- This is how the poor little guy has looked for a c...
- Picture taken within the last hour. They've start...
- Matthew is in hospital
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May
(26)
4 comments:
OH NO... I thought you had been too quiet!
I am sooooo sorry your wee darling is not well... I am hoping with everything in me that he gets better soon.
All my love.
Oh no, I'm so sad to hear this! We will send up prayers for the little man immediately. Get better, Matthew!! xo
This is a very sad picture, but I know he will be smiling soon. He is so adorable it must be awful for him to be sick. He just wants to play and have fun.
I love you so much Matthew. Get well soon.
Love, Grandma Sue
Seeing Matthew so miserable is heartbreaking. I think he will probably go home in a few days still on oxygen. His Respiratory Doctor was there three times yesterday to see him. We are so happy with all the nurses, doctors, respiratory therapist and staff. Summerlin is wonderful. I give it five stars.
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