Just got home from hospital. Mike just got off work and he'll be staying overnight w/ Magoo.
Dr. Nakamura (the pediatric pulmonologist) came in at 1am this morning, 3pm this afternoon and he was there again at 10pm tonight!! He is one of the hardest working doctors I've ever seen.
He said that it will most likely be a couple more days before Matthew can come home ~ and he might come home on oxygen. He is still very wheezy, junky in the lungs ~ his SAT's keep dipping into the 80's when he dozes off. He just doesn't feel good, you can see it in his little eyes.
My friend Gwenna text'd me tonight and said our foster baby had a 101 fever today... He is already on antibiotics, so I don't know what's up w/ that. She is giving him Tylenol and hoping he gets better.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
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May
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- Almost finished w/ the steroids. THANK GOD.
- A couple pics from the past couple days
- Just got home from hospital ... all hooked up to o...
- Not a good night last night for Matt and Mike
- Here it is... the shot we all dread in the hospita...
- Face of an Angel, Heart of a Soldier
- More strolls around the halls
- I just love this!
- The Elephant Mask
- Even the lion needed a breathing treatment today
- Matthew is very proactive in his care
- Reading Time
- Matthew finally gets out for a walk in the halls
- Mommy's sick too!!
- Sunday Update
- Just got home from hospital. Mike just got off wo...
- Couple of smiles today :)
- Dr. Seuss helps too!
- Vibrating Chest Vest
- Matthew Update
- Gwenna is an angel
- Charlotte's Web video has captured his attention a...
- Finally... a very short nap.
- This is how the poor little guy has looked for a c...
- Picture taken within the last hour. They've start...
- Matthew is in hospital
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May
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3 comments:
Gwenna is a life saver for Matthew as well. That's all Matthew needed was to pile another illness from this foster child on him. I think he has done significant damage with this hospital stay. I only wish Michael had listened to Terri at the beginning. Oh well, such is life.
Oh Terri, I'm glad Matthew is being so well taken care of. How are you and Mike doing? You must be just absolutely physically, mentally and emotionally drained!!!! Now the baby too, oh dear. Things seem to pile on sometimes don't they? We have really been thinking and praying for you all. I love all the pictures of your brave little Magoo.
Dr. Nakamura is truly a caring, dedicated pediatric doctor. To visit Matthew 3 times in one day is a perfect example of that. It is really wonderful that he has been Matthew's doctor from the beginning and knows him so well.
I'm glad Michael is able to spend the night with Matthew. When he wakes up he always knows that Terri and/or Michael will be there.
I'm sorry to hear that Jayden is also running a high temperature. Hopefully he will be well soon also. Thanks to Gwenna and her family for caring for him during this difficult time.
God Bless them both and Terri & Michael also as they must be totally exhausted.
Love and prayers to all of you.
Grandma Sue
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