Tis the season...

Not surprising ... but Magoo picked up some kind of "bug" at the doctors office or the diagnostic center this past week. He is sick with cold like symptoms. It never fails when he is healthy and we have to take him in for a well check up... he gets a bug. It is October ... so there ya go.

He is junky in the lungs, coughing, runny nose....GRUMPY... not eating much again...retching after his feeds and not sleeping well. ~ all that fun stuff. Did I mention that he is quite whiney???

No fever thank goodness.

Anyway... I am back to giving him chest compressions 4 to 6 times a day, percussion several times a day, baby Ibuprofen, and additional breathing treatments. Luckily he loves his breathing treatments, isn't that funny! Actually, he enjoys the chest compressions too!!

I want to give a thanks to my brother in law, Mitch who is a family doctor... he is the one who taught us the chest compressions last year and saved Magoo from having to be put on Prednisone.

He does seem to be handling this much better than last year though. He is at least coughing it up. I can't get him to blow his nose, though. It would be great if I could get him to do that!!

He was very happy yesterday to see his "Dwammma" and his "Auntie Tim"...
those were the two times yesterday he was in a good mood. Auntie Kim did get him a soft serve from Dairy Queen and he did have several bites of that!

Maybe I should ship him over to their houses for the rest of the week... what an idea!! *giggle*

Yes, and Magoo gave Mike his litte cold, too.

No more kidney reflux!! Wahhhh hoooo!!

Daddy getting Matthew ready for the very uncomfortable VCUG test.

Not so sure about this...... Isn't he just so sweet! Notice no pink this time... the hospitals now have blue and green garb.... usually he is in pink!

Having some fun putting his sunglasses on Daddy.

Passing the time by reading a Leap Frog book.
Actually, the hardest part is all over.... we are just waiting for Dr. Johnson to come in and check out his very full bladder. This is such a yukky test for him... and US, too! We are thrilled to tell you that there is no more kidney reflux!!!!!!!!!!!!!!!!!! He shouldn't ever have to do this test again.

Dr. Johnson was sooo nice... he actually looked just like Kevin Bacon!! I could hear "Footloose" playing in my head during the test. No, not really, but he sure looked like KB!! Poor little Matthew... he just wanted to get out of there. We were all happy it was over. The staff over at Sunrise Diagnostic was wonderful... Dr. J, Bruce and Angel. *sidebar: my arms really aren't that huge, this camera added 10 pounds to them.. snort!* He was just "spent" ~ came home and took a two hour nappie.

A one cheek peek.... he's saying, "Let's GO!"

Three and a half years of taking Septra, he's done. One more step to being more healthy.

Want some more!!

While I was up in Beaver last weekend we picked up DQ ice cream for the kids. Terri kept giving Matthew little bites of the soft swirl and he really liked it!! He'd smile at her and say, "want some more?"

Doctor month for Magoo

Here we are at Dr. Nakamura's office, Matthew was getting is oxygen SAT level checked. For some crazy reason, he doesn't like it. All they do is wrap a dealie around his toe, but he panics. His nurse Cynthia was telling funny stories. Yes, Mike checked w/ Matthew before we left the house to be sure they dressed alike ~ Mike loves to dress in the same colors as Matthew.

October is a busy doctor month for us. We just took him to our good buddy Dr. Michael Tenby for his pediatrician visit. Dr. Tenby now has his very own brand new office in Northwest Las Vegas. You can't ask for a better pediatrician..... I'm serious.

All was good. He does want us to take Magoo to Lili Claire
for some testing. They specialize with children that are on the autism spectrum, having speech problems and that have neurological issues. Now THAT, I'm having a difficult time with so I won't get into it. I am praying he is not on the spectrum and he's just behind due to health issues.
We saw Dr. Craig Nakamura yesterday ... he is Matthew's awesome and adorable pulmonologist.
We all got our flu shots there. It was hysterical, Matthew was fine for the shot (in his arm for the first time) but he freaked out over the band aid being put on! Dr. Craig told Mike and I that he didn't want to hear us crying after our shots. We actually love going to Dr. Nakamura's, all of his office staff is so wonderful to us. We love those people ~ they are extra special.

We take him to Sunrise Diagnostic Center on Tuesday for that nasty ole kidney reflux test.
I hate it, they put him in a straight jacket type deal and tie him to a board... put a tubie up his peenie and fill up his bladder. They tilt him back and forth and they watch on a monitor to see if his bladder backs up to his kidneys. Both sides used to back up.. but two years ago when we did this test, the left side had repaired itself. Hopefully the right side is fixed and we can quit giving him a daily dose of Septra.

At the end of the month we take him to Dr. Baron, the GI doc for a regular check up ... we started giving him a drug that increases his appetite... hoping he'll eat more by mouth and gain some weight.
It seems to be helping.

THEN we see our beloved Dr. Mayman for his 6th month ECHO. As you all know, I get very nervous ... I hope that his little leak is still little and there is NO sludge build up on that valve.
Keep your fingers crossed.

He has a school district special ed teacher come to the house two times a week and a speech therapist once a week. OT comes once a month. I feel that Nevada has really great people that work with Matthew. We were lucky w/ Nevada Early Intervention and now the school district.
I certainly can't complain. Some people complain about state agencies, and I think it's crazy.
We have always had wonderful caring case workers... starting with the Katie Beckett program.

Besides all that... Magoo is quite mischievous and we love it. He is talking more and it's so fun.

One thing that has been happening more frequently, his mic key button comes out!

He is so busy scootching off the couch or floor ... and his mic key button rips out...

Good thing we feed him every 2 to 3 hours ... otherwise we'd be at the ER having a radiologist put the thing back in. We have a short window to put it back in ourselves w/ some KY jelly.

It's always quite shocking to find his mic key laying on the floor fully inflated ... or to pick him up and find it missing !!!!

Fun fun.

Snug as a bug in a rug!!!!!

Isn't this the most darling picture!!!!!!!!!!!!!! They are like brothers and sisters.
Troy, Taylor and Magoo. These kids are so good w/ Matthew. I am so lucky.

Matthew joining Mike, Mom and I for my 39th birthday *snort* breakfast celebration at Mimi's.

Helping "Dramma" cut up her omelet. Of course he wasn't interested in a bite.

Showing off the sock he put on upside down... *giggling* Not bad for a first time.

Matthew takes showers w/ us, so I bring in toys to keep him busy... BUT, he left me a little present while I was drying my hair... ROFL... I can't stop laughing every time I see this pic. I have a similar pic when Casey was about the same age, except it was in the tub. LOL

Riding a very cool Schwinn tricycle. Thanks Roman for sharing.

Go'in to town on his little Zebra rocking horse his "Dramma" got him last year. *giggling* What a big silly he is. He actually got so crazy that he flipped backwards.... whoa horsey!!!

May God Bless your little soul Colin

A parents worst nightmare. A fear that we "heart families" always have in the back of our minds. (Well, mine and a couple other heart moms that I know.)
Colin w/ his mommy.

Colin w/ his daddy... most likely watching sports on TV!!!

Colin was a superman...there is no doubt about that.

We have posted about Colin in the past. The last post was in March.

Colin passed away unexpectedly on Sunday night. It seemed he was doing so well!!
I am absolutely heartbroken and shocked.

You can read his story here.

If you could, please leave a little message for his wonderful family. I know it would mean a lot to them. Colin had such a loving family.

This is a very touching video that Colin's parents put together of their short life with Colin,

to the song "The Dance" by Garth Brooks.

I can't help but smile when I think of what my fellow "heart mom" friend (Kathy, mommy to Isaac) used to call Colin...

Mr. Serious.

Dear friends of ours

This is Diane and her three little monkeys... Kenny, Kannon & Roman (just look at that hair!) ... Diane and her husband are a huge reason we decided to have a baby... she was pregnant with the twins when we decided to go ahead and try for a baby of our own. Mom, Kim and I were out shopping for her baby shower gift and Mom said..."Ohhhh, you and Mike should have a baby!!!"... and Kim is saying..."Ohhh, you should!!".... so we did!!

Look at those little munchkin faces!!!! This is the sweetest family you could ever meet. Those are the kindest, most loving little boys!! They get it from their mommy Diane. Diane has the most infectious laugh... and Roman now has that laugh.

Matthew just didn't know WHAT to do when Kenny came to "give him some love".. hee hee

Well well well, what do we have here?

I was in the back room for only a couple minutes and this is what I came out to see.

Being his fathers son, he figured out how to climb up on the counter. Hum.. I'm not saying that Mike walks on the counters or anything... just that he's very resourceful.

I just had to brag about this cabin a little bit. Mike and their neighbor Tim have done such an amazing job building this cabin. Everytime I think about their work, I am so impressed. Then when I actually see it ... oh my heavens, it is just unbelievable!! Terri may not lift a hammer, but she keeps the boys' tummies full, their britches clean, and handles all the interference with the water rights folks, insurance agencies, etc. Not to mention chasing Magoo all over the place!! We are so blessed. I can't wait to spend the rest of my life enjoying the fruits of their labor.

Some fun pics

Matthew, Auntie Kim (Matthew says, "Auntie Tim") and Dan the Man ~ out having breakfast.

Cool dude.

Matthew and "Fluffy" the cat.... Fluffy loves Matthew!!

Our little "doo rag" dude. He was so proud of his little "doo rag"... just like his Uncle Tim.

Sippin on an Arby's orange and cream swirl.

Hum.... should I come up?????

Chilling w/ his pal Taylor.

Going to help daddy!

Taking a break to read.

Ready to go, dad! I have my eye and ear protection on!

Matthew's "new thing" is to get ice from the ice maker! He loves filling his cups up w/ ice.

First it was flushing everything down the toilet... now it's the ice maker!

I was looking thru all of Mike's adorable little You Tube video's of Magoo..

and this one was just so darling... it was when he was first learning to walk... Mike's little

"Buckaroo".

Just chillin on the bed watching a little morning TV.

After a long day of work at play, cuddling up w/ his Auntie Tanji while she studies.

Some fun pics

Matthew and Taylor watching DVD's while traveling to Beaver.

Auntie G and Magoo w/ his little Dragon they bought for him.

In the dog house.

The stethescope snatcher. Poor Dr. Baron, Magoo was all over him ~ he WANTED that stethescope.

Matthew and his speech therapist, Mr. Chris.

Matthew and his teacher, Miss Jenn.

Daddy's little helper.

Mike and Tim had this wall all lined up and ready to be screwed together, but Matthew had a different plan.

On our way to Beaver!!

Getting warmed up by Grandma after spending a couple hours in Uncle Keith & Auntie G's pool.

We met daddy for lunch one evening.

Uncle Joel, Taylor, Casey and Magoo.

Christine, one of Matthew's nurses from Stanford. She took care of Matthew after both heart surgeries.

Matthew and Taylor bug. Taylor spent a few days with us. We all had a blast.