Lately, Matthew has been protesting bedtime. Terri says he stands up in his crib and cries until he falls asleep. Now that's fortitude!
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
(185)
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July
(15)
- Cuppycake
- Happy Heart Day, Magoo
- Why Parents Never Sleep
- Matthew's Feeding Machine
- The Distracted Listener
- Andrea's Closet
- Reading Time
- Got Food?
- Have you ever been this tired?
- Terri & Mike on the Radio
- Swimming with Uncle Keith
- Happy 231st Birthday America!
- The Lawn Chair
- Our Sunday Drive
- Wild Flowers
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July
(15)
6 comments:
I have to admit, "Matthew has taken after his energetic mom" when it comes to his sleeping habits. (snicker, snicker) Terri never wanted to go to bed and made short work of it when she did.
Matthew is just a busy little boy with lots to see and do now that he is up and around. I do believe that once he konks out, he is down for the count. This allows mommy to hook him up to his overnight feeding machine. That is another story in itself.
You have to admit, though, Matthew does look pretty darn cute standing up while sound asleep. I've seen people do that at work only they kept their eyes "open". Ha Ha
Love you sweet little boy! grandma wright
Honestly, that is the cutest thing I've ever seen. I can't stop looking at his cuteness, sleeping on the edge of his crib.
That is so cute!!! I can't believe he falls asleep standing up!!!
That's a classic. Connor has fallen asleep with things in his hands while sitting but never standing up. Priceless!
The Special Zipper
This is so cute. I love the background set up with the drive-in movie. I would pay good money to see that cute boy on the big screen. He doesn't want to miss anything but he just wears himself out and falls asleep. It's so hard to hear him cry but I know if you keep getting him up, he'll know he won the battle.
The pictures are darling.
Love, Grandma Sue
Wow, that is awesome you got that on camera! What a cute little fighter. Makes you wish there were padding on that beautiful woodwork.
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