Terri & I took Matthew to a local water park last weekend. We all ran, splashed, and laughed the afternoon away.
Subscribe to:
Post Comments (Atom)
skip to main |
skip to sidebar
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
3 comments:
Matthew is the sweetest little boy; but he has proved he is not made of sugar. These pictures verify that!
A trip to the water park made for a fun evening for all. Matthew loves water puddles and here he gets his fill of small ones and large ones. Whoopie!
Matthew has shown that he is no clinging vine when it comes to adventure. I loved the one where he is laughing at his mommy getting wet too.
As hot as it has been here in Las Vegas, you dry off fast after a good dousing. Daddy had his turn to run through the sprays as well with Magoo in tow.
I love this little "squirt" and his fearless spirit. grandma wright
That must feel wonderful in the hot Las Vegas sun. He definitely likes puddles. He and Mommy both look like they are having fun. He is so photogenic and the pictures are all great. He is here in California now and I'm enjoying ever second I can spend with him. He is so much fun and so good.
I love you Matthew. Grandma Sue
Matthew is looking good
Thanks for posting. Matthew is such an inspiration. We pray for Matthew The Miracle Boy. Have a fine Saturday at the SF BAY AREA!
cfs
Post a Comment