I don't know who enjoys these "Superman" pajamas more; Terri & me or Matthew.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
5 comments:
Hey, there are "super powers" in those jammees! Super-Goo thinks he can leap short gates in a single bound, escape bedtime when the lights go out and fly down the hall with the greatest of speed........ But he still has to make a pit stop for his sippy cup.
You can just feel the enthusiam running through this little body. I must say, he certainly looks like a big boy and has proven to all of us, he IS "SuperMagoo". Superman has definitely returned. That cape just cracked me up!! Love ya as always! grandma wright
That is so cute - Go Supermagoo - escape bedtime.
Oh my gosh, these are the cutest pajamas I have seen and are just perfect for our little super hero. He seems to know that he has a special suit on that gives him power to run, jump and fly. I can just hear him squealing as he runs down the hall.
Oh, one thing Lori and I both heard him say while he was here was "happy". I'm sure you have all heard it, but I had not. When he said it at Johnny's house, he had a big smile on his face. It truly makes you melt. It won't be long before he'll be telling us all stories. Won't it be interesting to finally know what he is thinking? Can't wait.
Love to all. Grandma Sue
I have never hear Matthew say anything other than ...
uh oh....???
He babbles.. but ...??
pure cuteness, indded!
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