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One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
9 comments:
HAPPY, HAPPY BIRTHDAY MATTHEW!!!!
Grandma Sue fit right into Matthew's schedule and heart.
Children must automatically know their grandmothers. At least Matthew did Grandma Sue. You would never have know there had been any time or distance between them.
Grandma Sue was a wonderful addition that completed the birthday family celebration
Grandma wright enjoyed her 5 day visit as well. We certainly do share a common love and interest.
grandma wright a.k.a umn
Happy Birthday Matthew a few days late from nurse Christine! I cannot believe how big he is - he is a big boy now, not a baby. I am so happy for all of you! Cangrtas on the MD visit also. Miss all of you, but glad I have not seen you guys back....hopefully not again. ;) Give Matthew a big hug and kiss from me.
Love,
Christine
I meant Congrats....bad typer!
what wonderful pictures, you can see alll the love!
WOW! I cannot BELIEVE all that you have been through. I was searching for information on Dr. Hanley because our little man need to have surgery for his TOF/PA/MAPCAs next Friday and your blog came up. I just got done reading through your entire journey and once again...WOW! Lots of trials and joys for you guys. My husband and I have already been on a little journey of our own, and we have a long way yet to go. You can take a look at our blog, if you'd like: http://babyporta.blogspot.com/
We are strong believers in the power of prayer and miracles, so we will most definitely add your family to our prayers. If you wouldn't mind, say a prayer for our little Elijah, who will have his first surgery here in Minneapolis next Friday, May 25th. We are very hopeful, but very nervous, too.
It looks to me like God put Matthew into the perfect home to be cared as best as he possibly can be! From your blog, you seem to be amazing, loving parents. We will bookmark your page and check back on Matthew's progress. He seems to be a happy kid and that is very important!
God Bless you all!
Megan (& Dan & Elijah) :)
Being a "funny" grandmother myself, I can relate to Grandma Sue completely!
awwww. My boy has a Grandma Susan and he is so in love with her and vice versa. SUCH precious pictures!!
I loved every second of being with Matthew for 5 whole days. I miss him so much I can't wait to return. He is so delightful and funny and a joy to be with. I had a great time and got to share babysitting duties with Grandma Wright. We had so much fun running after Matthew. It brought back so many memories of all the fun I had with his Daddy when he was growing up. I hope to be able to share all the fun things with Matthew, Michael & Terri and all the family.
I love you all so much.
Grandma Sue
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