Since Matthew doesn't eat on his own, breakfast is like a Nascar pit stop. We sit him on our lap, administer his meds, pour some fuel into his tank, clean his windshield, and then give him the green flag!
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
(185)
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May
(15)
- Chicken Noodle Surprise
- Anatomy of a Breathing Treatment
- Matthew & the Mirror
- To all our Prayer Bears!!
- Grandma Sue's Visit
- Doggie Bath
- Jumping in the Castle
- The Cake
- Our Guests
- Happy 2nd birthday Matthew!
- Couple more cute pics of Magoo
- Breakfast Anyone?
- A Ride in the Wagon
- Open Invitation ~ Matthew's 2nd birthday
- Look Ma! No cavities!!
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May
(15)
5 comments:
Yum Yum! this picture makes that ice cream sundae look sooooo good! Ha Ha
Can you believe this is Matthew's preferred way of eating? I guess it takes away from "that last bite was so good, I just have to have another" feeling. I should eat Reeses's peanut butter cups and potato chips like this. The bag wouldn't get "deflated" so soon.
That smile of Matthew makes my day. He looks more and more like Mike's baby pictures each day. His laughter is so contagious that it would put a smile on any bad mood. Love you sweet little boy! grandma wright a.k.a. uma
Darling photo... and cute post! Clever!
Dorky Dad's wife here.
What a cutie! Love the little "outie" bellybutton.
Your pit stop reference made me wonder: has he seen the movie Cars yet? Our two-year-old really loves it. And, as I'm sure you know, it's almost impossible to avoid all the young-boy-oriented Cars merchandise even if you never see the movie...
Look at those faces... Heaven...right here on earth.
Love the photo and the pitstop description
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