While suprised that Matthew was semi-cooperative the other day at feeding time, Terri still had to ask, "which organ received more soup; the stomach or the epidermis?"
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
(185)
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May
(15)
- Chicken Noodle Surprise
- Anatomy of a Breathing Treatment
- Matthew & the Mirror
- To all our Prayer Bears!!
- Grandma Sue's Visit
- Doggie Bath
- Jumping in the Castle
- The Cake
- Our Guests
- Happy 2nd birthday Matthew!
- Couple more cute pics of Magoo
- Breakfast Anyone?
- A Ride in the Wagon
- Open Invitation ~ Matthew's 2nd birthday
- Look Ma! No cavities!!
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May
(15)
11 comments:
This is a sight for sore eyes to see Matthew actually "touching" his food.
He is learning that mealtime can be fun too. Unfortunately fun for a 2 year old is "messy". Matthew watches his mommy and daddy very closely and mimics them. One of these days he will actually surprise you and "put some food in his mouth". Ha ha
How sweet he is!!!!! Love you little tigger chef! grandma wright
sommmmmmedayyyyyy is right...
he's not into eating one bit ...
nope....
not one bit.... no matter what I try...
it's the ole "pursed tight little lips" and the "karate chop" arms.
the battle continues!
Even if he didn't eat it, it looks like he enjoyed the chicken noodle! Matthew is so cute :)
Hey, you remember when he was eating the food and Grandma Wright, Kim and I were cheering him on with every bite. Maybe that's what he's waiting for - an audience. I know it's a test, but I'm sure he will pass this one just like all the rest.
He's so darn cute, no matter what he does.
I love you Matthew and miss you so much.
Grandma Sue
Yep. Those were the first two times and the last two times.
It is the strangest thing.
Maybe he does need an audience???
He loos great - and I hope you win the battle soon. :) I've had fun catching up - I love all the pics that have been put up lately - that breathing treatment episode sounds like something Jacob would have pulled. What a little genius. :)
I just found your blog through little woolgatherings and you have been through so much! My daughter is only 3 days older than Matthew. I was so excited when I got to the part that you were able to remove the oxygen during the day and I could see that cute little face without any obstructions. I am really glad that everything is working out and he has turned into a typical 2 year old, getting into as much trouble as possible!!
We are the Hill Family and I came across your blog serching under Pulmonary Atresia MAPCA's. Anyway, Matthew is adorable and looks to be doing so well. Our daughter Emma Anne has had 4 heart surgeries for the same congenital defect--by yes, the world famous and amazing Dr. Hanley. After spending virtually the first 2 years of life in and out of hospitals she is now 6 years old, goes to kingergarten and is loving life. You look like such caring and dedicated parents and Matthew looks wonderful!!
hey:) you could enter the bounty one sheet contest:) Izzy manges to looks the same after dinner:) wonderful photos I always enjoy checking in on you guys:)
I am so out of touch! I am glad you are still going strong with trying to get him to eat the good old fashioned way. He'll get it! Don't give up!
He's so cute!
Hey, guys -- I hope that everything is going OK. It's not like you to go this long without postings, so you're making me worry!!!
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