Thursday, November 30, 2006
Grandma Wright couldn't wait for Christmas day to give Matthew this adorable little rocking horse (it's actually a Zebra). Initially, Matthew wasn't too sure about being placed upon his mighty steed. After mommy & I hummed a few bars from a cowboy song, the perpetual smile was back on Matthew's face.
Tuesday, November 28, 2006
Monday, November 27, 2006
Thursday, November 23, 2006
Wednesday, November 22, 2006
The act of a child eating a Cheeto is likely a non-event in most households. But for us it signaled a major breakthrough! You see, in addition to his many challenges, Matthew also has an oral aversion. Six months of uncomfortable tubes in his mouth (and a feeding tube which ensures he is never hungry) has left our little guy with no desire to eat. Most offerings of food are greeted with swatting hands and a sour expression on his face. Ever vigilant, Terri keeps on offering things to Matthew in the hopes that he will eventually show interest. Well thanks to a week of steroids to treat a respiratory infection, Matthew has been receptive to his bottle and today he tasted & nibbled his first Cheeto!
Sunday, November 19, 2006
Wednesday, November 15, 2006
Monday, November 13, 2006
Saturday, November 11, 2006
After thanking God, how will we ever be able to thank KVBC for getting the story out and LVMPD (Metro) for pushing the cap through??? A thousand "thank-you's" seems so inadequate.
My eyes tear up every time I think of our little Whomagoo being able to continue receiving the best medical care possible. It is truly an intolerable thought that it could very well have not been this way. What a relief that I can now safely push that fear quickly out of my mind.
No parent should face this fear. You, Mike, and Matthew have put a face on this unthinkable situation for all similarly situated families in Nevada. How fabulous it will be when this legislation can make a difference in some families lives and they, too, can breathe a sign of relief.
My eyes tear up every time I think of our little Whomagoo being able to continue receiving the best medical care possible. It is truly an intolerable thought that it could very well have not been this way. What a relief that I can now safely push that fear quickly out of my mind.
No parent should face this fear. You, Mike, and Matthew have put a face on this unthinkable situation for all similarly situated families in Nevada. How fabulous it will be when this legislation can make a difference in some families lives and they, too, can breathe a sign of relief.
Friday, November 10, 2006
Matthew's story was featured last night on our local NBC news station. The reporter, Beth Fisher, and everyone behind the scenes did a great job of bringing to light the difficulties in providing for a sick child. Here is the link to see the news clip... CLICK HERE
Subscribe to:
Posts (Atom)