Auntie Tim is really Auntie KIM. He can't pronounce his K's. His K's are T's. 
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
7 comments:
What a totally gorgeous and cool bike!!! I hope Magoo loves it!
He still doesn't get the whole peddle thing..
he just scoots for now...
He loves the bell on the handlebars and knows how to use it.... frequently. It's a perfect size and perfect height for Magoo. No wonder he is such a happy little guy.
Well Auntie Kim did it again. That is a great looking bike (tricycle) and the perfect size for Matthew. I actually had a 4 wheel bike when I was little and it had a steering wheel. Very cool at the time. I'm sure it won't take long for him to star peddling it either.
I also love the Peanut ball his teacher has him sit (bounce) on. I think they need that in all the schools for the kids who like to move around. The wonderful table and chairs work out perfectly for doing his school work. It's great to see how well he is doing.
Love Grandma Sue
How cute! I love it. Way to go, Auntie Tim! :)
That is a sweet ride!!! It's so great to have extended family around to spoil kids since we as parents can't. Way to go Auntie Kim!
What a cool looking bike! What a nice Auntie you have there Matthew. :)
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