Matthew's new table & chairs are the preferred meeting area when Grandma Wright comes over. A good book and Mr. Potato Head make for the perfect play time.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
4 comments:
Mr. Potato Head was a bit of a challenge for grandma; but Matthew had it down to a science. Notice his casual pose sitting on top of the table. Matthew does a great job getting all the parts in the right places; with the exception of the two sets of eyes. Hee Hee No need for glasses with that four eyed creature. Matthew had a bucket of viable parts to select from. I guess two sets of eyes is not a bad thing?
Matthew's table has become our "meeting place". He is very comfortable either on top the table or sitting on a chair. I do pretty good until it comes time to get up. (do you have a crane in that pile of toys perchance?) Just kidding.........but the low level does play a part in my circulation.
Love to spend time with this little potato head creator & book worm. grandma wight
These are great pictures. He is letting his Grandma know how to put things together and really seems to love his new table and chairs. That was a great idea. He now has his own space for his toys and his friends to play with him. What a joy he is.
I know for sure that I would have a hard time getting up after sitting so low, but I'm sure it's worth it just to see him having so much fun.
Love, Grandma Sue
What a great Grandma! Such cute pictures.
Sorry we missed you this weekend. Jake didn't get back from Michigan until late Saturday night. Jake is at UMC this month close to your house. Maybe we can get together one of these days after he gets off work.
Those look like some very precious and memorable times.
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