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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
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April
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- Life could not be better!
- The Red Wagon
- Why won't you eat?
- Sleeping baby pictures are always a hit! So we tho...
- ECHO this coming Monday
- Theme song from Courtship of Eddie's Father
- Matthew's Quilt Block
- The Easter egg hunt
- The Backhoe Driver
- The Sound Sleeper
- Testimony could not have gone better
- Terri's testimony supporting the Family Opportunit...
- Mike's testimony to the legislators
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April
(13)
3 comments:
Go figure, dad!!!!!! One of these days Matthew is going to "accidentally" put some food in his mouth and "like" it.
I would look at the fact that he is starting to put things in his mouth as a "good thing". At least the gagging tendency doesn't follow. Every day Matthew shows us something new to appreciate about him. Eating Food will be added to that list someday, I promise!
"Think Positive" is my motto........ it hasn't let me down yet. "You go Matthew"! grandma wright a.k.a uma
We had one son with really unusual oral issues. He is 11 now and has grown out of almost all of it, but for many years, was terribly sensitive to textures of foods.
It was so bad that if he tried to put foods with certain textures in his mouth and chew them, he would throw up. At first, I didn't understand and was trying to make him eat it anyway... when we realized it was the texture of the food that was giving him fits, we were able to change it and give him more foods that were easier for him. He still isn't crazy about certain meats and fruits, but now he loves vegs alot...
For example, he loves apples and applesauce and grapes, but not raisins, bananas or pears. He loves hamburger but not cubed steak. Chicken but not fish.
J.
I too hope that this aversion passes quickly. He has done so well with all the other issues he has gone through, that this will be taken care if time.
I did think of one thing - how about a big marshmallow. That's almost like chewing on a toy. Just putting my thoughts out there. He looks wonderful and is playful and happy. The pictures and videos are great.
I love you Matthew. Grandma Sue
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