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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2009
(79)
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August
(10)
- Swinging at Marie's
- Everyone on the in ground trampoline.
- On our way to Dr. Tenby's to check lungs
- Matthew had pneumonia again *sigh*
- Matthew's meds for the day & nourismnt
- Plumb tuckered out~had been a long day for Magoo
- Spent 3 hours in the ER last night ~ fun fun
- Heading to Beaver with the cats hanging out.
- What a difference in two months
- Some fun pictures of the GooMan
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August
(10)
2 comments:
What an amazing job you both have done. We all love the pictures of him eating and actually enjoying it. I think more of that will come.
It really helps when he is feeling well and enjoying life. All the rest falls into place.
I Love all of you and miss you.
Grandma Sue
When Matthew comes to our house he eats by mouth all the time. He'll even ask, "want some yoghurt". I make him pringles and peanut butter sandwiches. He loves them. He loves string cheese and drinks apple juice. Once he goes through a sick spell, it's back to square one again. He thought an oatmeal cookie was pretty good too. It's a slow process.
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