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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2009
(79)
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August
(10)
- Swinging at Marie's
- Everyone on the in ground trampoline.
- On our way to Dr. Tenby's to check lungs
- Matthew had pneumonia again *sigh*
- Matthew's meds for the day & nourismnt
- Plumb tuckered out~had been a long day for Magoo
- Spent 3 hours in the ER last night ~ fun fun
- Heading to Beaver with the cats hanging out.
- What a difference in two months
- Some fun pictures of the GooMan
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August
(10)
5 comments:
God love him! Blessings to you and yours my friend,
Katie
I think on eof the few BENEFITS of having a Gastrostomy is that the poor kid doesn't have to swallow all those medications! I hope he's much better soon.
I sure hope he starts feeling better soon. Kristin
Matthew is up and about and busy as every. He seems to bounce back like a rubber ball. Really enjoyed his visit yesterday morning. He filled his Magic Bullet with water and we played "outside" until Mommy arrived. What is there about water that entertains a little one so?
Just wanted you to know we have Matthew in our hearts and hope he will bet better soon.
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