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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2009
(79)
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August
(10)
- Swinging at Marie's
- Everyone on the in ground trampoline.
- On our way to Dr. Tenby's to check lungs
- Matthew had pneumonia again *sigh*
- Matthew's meds for the day & nourismnt
- Plumb tuckered out~had been a long day for Magoo
- Spent 3 hours in the ER last night ~ fun fun
- Heading to Beaver with the cats hanging out.
- What a difference in two months
- Some fun pictures of the GooMan
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August
(10)
3 comments:
Mom and RoyLe were sooo sweet to come with Matthew and I both days to see the doctor.
Matthew was in heaven...well at least the second day. The first day he was soo sick, that he retched the entire way! Mom sat back there with a rag and had to keep wiping it up. He sat in her lap at dr office... and when it came time for the shot, he started calling out her name to save him!
It was kinda sad...
but he was a champ and only cried for a minute.
He's doing a lot better, on a ten day supply again of antibiotics.
He still has one lung that is a bit junky.
Matthew was a different kid from the day before. He was so energetic and funny. He kept us all laughing the entire time, both in the car and in the office. Even Dr. Tenby got a chuckle out of him. Matthew just knows he is very well loved. We just love him so much and want to keep him well and happy.
It's so good that Grandma and PaPa were able to go with you. I know how stressful those appointments are when they have to get shots. Matthew has had more than his share. It's really sad that this latest illness is affecting his lungs. It took a very long time to get them cleared up from the time he was born.
I'm so glad to see Janet's comments about how Matthew was feeling so much better the second day and had everyone laughing. That must have been a joy for all.
I'm hoping to come see you soon.
Love, Grandma Sue
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