Hopefully he'll be better tomorrow... tomorrow will be his last day on antibiotics.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
10 comments:
Oh Matthew!!! I hope you start feeling better today! Heart Hugs.
Matthew has experienced a pretty rough February 2007. He can't seem to shake this "thing" or cold that he has been enduring. This month has been a "jolt of a reminder" that his immune system is not what it should be and working on less cylinders than ours. It's just not like Matthew to just lay around and not be active. HIs little eyes tell the story of how he is feeling.
None of us can let down our active guard of washing our hands and staying away when we are not feeling well. With all the cold products off the market for children because "some" parents overdosed their children, there isn't much relief out there for our little magoo and his conjestion.
We couldn't stop by and see Matthew this past weekend because PaPa LeRoy has a bad cold.
Get well, Matthew! Your grandmas worry about you. Love grandma wright
oh Magoo!! i can tell your so so tired of this bug!!! you rest and get alllllllllllll better baby darlin!!!
big hugs from antinesi!
Poor Matthew! I sure hope he starts feeling better soon.
The pics are sooo cute, though! What a sweetie bug, all sprawled out like that. Aaaww.
I hope you were able to get a nap in while he napped! Poor little guy...I hope he starts feeling better soon. Although...I got your note about the steroids...sorry. I guess we'll meet up again in the summer...when all the germs are fried by the sun!
I'll talk to you soon!
HUG your little man for me!
Kathy
Hope that sweet little man gets well soon, even while he's sick he still does not take a bad picture.
Liam's had a viral thing since Christmas but he doesn't "act" sick at all. I am so sorry to see Matthew so drained. I do hope "tomorrow" ended up being better.
Have a happy weekend!
We love the shirt..It gave us a good laugh...I hope Matthew is feeling better. Thanks for all the support on our blog. Now we are sending you prayers hoping he is back on his feet in no time.
Poor little Monkey. :( I'm loving that shirt!
These picture certainly tug at the heart strings. It's so hard to see Matthew not up and running around. Of course that will be happening again soon, so maybe you should try to get some rest now. I hope this has run the course and all the conjestion gets out of his lungs soon. I'm sure the breathing treatments will make a huge difference.
I love you so much Matthew and hope you will be well soon.
Love, Grandma Sue
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