Saturday, January 26, 2008
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
14 comments:
I am STILL SO TICKLED PINK over this...
sooo stinking cute...
I LOVE THAT DENNIS THE MENACE HAIR!!
*giggling*
Wow! What a man! I love his little voice and he is counting so well! Proud parent moment, isn't it?!!!
This video brought tears to my eyes. Matthew is so capable of speaking; but as evidenced in this video it will be at his own pace and in his own time.
Being around other children is definitely a plus for any youngster. It was so worth it for him to be around those children of different ages in Beaver. Children learn so eagerly from other children. I hope his immune system will someday allow him to interact with other children his own age as well.
I think Matthew's A, B,
c's will come as easily as well. He already humms the tune.
Way to go, my sweet lil'l boy, grandma wright
Oh that's so awesome you guys! That is wonderful sweetness to hear. I bet you are so proud!
YAY MATTHEW!!
oooooooooooooooooh...love it. LOVE IT!! What a smart little punkin.
GO MATTHEW!!
How EXCITING! I think he'll definitely be a numbers guy :)Mostly, what a beautiful triumph for a beautiful family who has heaped love on each other and overcome so much!
Look at him go! That is great!
YEAH Matthew!!!
You're a big boy now!!!
Looks like you accomplished so many things while at Beaver!!!
That's so wonderful!!
Hey, hey, hey!! That's our boy, McGoo!!
Oh, I'm thrilled. It actually brought tears to my eyes because it's such a great accomplishment. We all know how smart he is and you can see by the way he was counting his fingers. Keep up the great work. He is definitely proud of himself also.
I love you all so much. I can't wait to come and visit.
Love, Grandma Sue
This is so precious, HE can count better than a old East Texas Redneck Known as the chikenherder
okay- sooo precious.
yeah!!! go Mathew go! we are so happy to see and hear you counting! I am happy that all the interaction has helped encourage him ! Izabell had some of her cousins around during the wedding and we have been seeing the leaps with food and speech as well! it is wonderful to see!
Good job Matthew!
I am glad that having friends around is helping him out.
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