Wednesday, December 05, 2007
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
(185)
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December
(13)
- Matthew Marsupial
- Focus on the Family
- Merry Christmas '07
- Merry Christmas from the WhoMagoo Family
- An early Christmas
- Matthew checking out his heart w/ the stethoscope
- Steel Magnolia: Little Drummer Boy ~ playing to Jo...
- Steel Magnolia: I am going to be sick
- Steel Magnolia: Casey hasn't gone back to the cath...
- My oldest son, Casey
- WhoMagoo Christmas jammies!!!
- Little stinker... crawling into the tub looking fo...
- Proud daddy and son
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December
(13)
4 comments:
Hi Terri,
I read your notes on your Steel Magnolia Blog and just can't believe they have had him there all day. Then the equipment malfunctions - that's terrible.
I'm glad you were able to spend a good portion of your day with him. I know you would probably like to have a bed right next to him. That's the way Mom's are.
I hope Casey will feel good when he wakes up and hope they can give you and Casey some positive news to keep you going until January when they will do the next procedure.
I love you Terri. Sue
After it malfunctioned, they decided to not repair after all.
He needs further testing to rule out a couple other things.
OK - I am glad to read your update that he is doing OK. . . but how frustrating!!! What a day!
oh terri....my God, what a nightmare....i am hugging you darlin friend.....and hugging my dear casey james....plese give him my love and let him know he is in my prayers....will be watching for more news.
love,
anti nesi
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