I will get some pictures of Matthew up real soon.
He is so funny...
he's singing this cute little song....
moo moo buzz buzz,
pop pop klop,
cock a doodle doo doo who who
dibble dibble dop,
tick tock knock knock
boom boom SPLAT!
last a whisper whisper
and THAT IS THAT...
from Mr. Brown Can Moo, Can You??
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
4 comments:
I can't wait to hear him sing that. What a cute song. Little by little he is saying more and more. I called yesterday and got to talk to him. I could hear him talking about Blues Clues. Michael said when I was talking his eyes kept going back and forth between the phone and Michael. He hasn't seen me in a long time so I'm trying to arrange a visit real soon.
Love, Grandma Sue
Do you guys have him in preschool yet? It's amazing the songs and rhymes she brings home from school.
Matthew is going to have some connection with music when he grows up. He loves to sing. Matthew is getting to where he loves to jabber on the telephone. He knows who his Grandma Sue is even though he hasn't seen her for a while. He points to her picture and says "grandma sue". I am proud to say I taught him that. We grandmas must stick together.
That is awesome that he memorized all that! What a man!
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