Matthew hugging his new little girlie friend in Beaver, this is Kayla! Tim & Tanji's little neice.
Standing on our new front deck. 
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
8 comments:
Awww so cute! Wonder how long it will last!
I think Matthew hugging his new friend is sweet. He is quite the little man these days. I love and appreciate is phone calls. They are always so focused on his favorite toy. Ha Ha
What a cute girl you have there, Matthew. :)
It's so great to see him playing with the other kids and even a hug. Of course the second picture is to let us know he is still "Bob the Builder" (actually Matthew)and not too sure about the girly hugs.
He is adorable and I can wait to see him. The cabin looks wonderful. What a great job.
Love, Grandma Sue
Terry, Hi! Did you hear about the campaign to flooe Oprah with letter in ref to CHD and these children. If not, please e-mail me at kelleynr@yahoo.com and I will send you the details. Thanks, Kelleyn
They are a beautiful couple those two! I'm impressed your boy hugs. My boy would probably shove a car in her face and shout PLAY!
I believe Magoo may be a player
Hey there folks, I'm ready for some new pictures of Magoo. hint hint
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