Monday, September 05, 2005


Matthew the Pharaoh

Matthew looked like a proud, albeit sleepy, Egyptian Pharaoh today in his bouncy chair. As his highness slumbered, Terri and I spoke with Dr. Wright and Dr. Conrad. They both had to work on a holiday but would likely be roaming the halls regardless due to their dedication. They are in agreement that the plan of action is to start weaning Matthew down on any settings possible, decrease his respiratory treatments from 8 to 4 a day (the number Mommy & Daddy would be doing at home), pull back his feeding tube to his stomach instead of intestines, and transition to oral medication where possible. This will all happen at a cautiously slow pace with the hopes of getting him ready for life at home. I must stress that these transitions will be phased in over weeks instead of days.
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