Daddy inserting Matthew's feeding tube.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2005
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September
(89)
- Matthew is the poster baby for Melanie Baldwin's d...
- Mommy consoling Matthew.
- Today Matthew was taken off of Vapotherm! He is no...
- Over the past couple of days Matthew has been very...
- Matthew gazing at his reflection.
- See no evil
- Have you ever seen a more worldly, experienced loo...
- Matthew is hang'in with the boys.
- Matthew gazes at his mobileMatthew had a good day....
- Matthew & Daddy watch football
- Matthew was smiling big for Aunt Kim today.Aunt Ki...
- Blasphemy was brought into my house today. Uncle K...
- Today was Terri's Birthday. She turned sweet sixte...
- Matthew's boxer poseMatthew weighed in at a bruisi...
- Dart is back on the job holding Matthew�s pacifier.
- By the end of the day Matthew�s fever had subsided...
- "Not now Daddy. I'm talking to Mommy."
- Matthew takes a deep breath during Jessy's respira...
- Daddy and Matthew share a knowing glance after his...
- Big Brother Casey visited for over 4 hours today.
- On the phone with Doctor MaymanMatthew is wrestlin...
- Matthew is comforted by his fur & feathered friends.
- Matthew�s transport was a complete success! Matthe...
- Matthew is loaded into his Ambulance.
- Brenda, Rebecca, and Alex the RT came from Las Veg...
- Ashley was Matthew�s Social Worker. She brightens ...
- This is the world famous, ever positive, Sandy! Sh...
- Carolyn is the head Chaplain at the children�s hos...
- Carolyn blesses Matthew
- Grandma Sue couldn't miss the farewell party! I lo...
- Jerry was Matthew's parrot loving Respiratory Ther...
- Tracey watched over Matthew like a hawk when he wa...
- Keniki always put Terri at ease. We will miss her.
- Keniki and Beatrice dropped in to say goodbye to M...
- Everyone please pray for a smooth flight tomorrow....
- I can't wait to meet Sunny!
- This evening we spoke with Med Flight, the medical...
- Steve & Cynthia Hoer from Las Vegas came to visit ...
- For Matthew, the waiting is the hardest part.
- Dan & �Lucy Lu� Jiang came to visit us this aftern...
- The King Trio with Josh & Kristen CarterJosh & Kri...
- We saw Dr. Hanley yesterday on our way out of the ...
- This is Jing, one of Matthew's loving night nurses...
- Grandma Sue helped keep Matthew's pacifier in plac...
- Matthew looking out his new window.
- We were moved to a new room across the way today. ...
- Matthew and I wore Matching red shirts todayRichar...
- This was Matthew at 10am and...
- �this was Matthew at 4pmHaving trouble differentia...
- Matthew & KatelynThankfully, it appears that yeste...
- Daddy inserting Matthew's feeding tube.
- Back to NormalWe have encouraging travel news. Our...
- On a ridiculous note, we regret to tell all of you...
- Today we went from this...
- ...To thisMatthew was smiling and fine at 2pm when...
- Today Dr. Kache told us that they are in the begin...
- So will I be flying first class or coach?
- Introducing Matthew to birdies early.
- Connie trains Terri to give respiratory treatments.
- Matthew's night nurse Lance
- Reunited�If you are hearing Peaches & Herb in your...
- "Go Niners!"Matthew and I watched the 49ers beat U...
- Matthew going for the noseI wanted to take a momen...
- Today is the four month anniversary of Matthew�s b...
- Grandma Sue came to visit and stayed all afternoon...
- My sister, Lori, gave Matthew this sign. I think i...
- Two Months ago today Matthew was in trouble. His d...
- Matthew had a mixed day today. First thing this mo...
- Matthew Medical FundTerri and I are blessed with w...
- More visitors than the President and the God Fathe...
- You again?
- Dart lending Matthew a nose
- Yes, this is my third outfit today!I also spoke wi...
- �Transitional� Plan in MotionDr. Gail Wright�s pla...
- Matthew in his race car outfitLast night I got to ...
- Auntie Kim with MatthewKim was quite excited today...
- Matthew the PharaohMatthew looked like a proud, al...
- Just us BoysToday Terri went home for the week wit...
- New to our Blog?If you are new to the Blog and wou...
- Daddy Holding MatthewI got to hold Matthew today. ...
- Matthew in his hospital bedThis is an artist�s ren...
- Matthew�s Blessing BlanketThis Blanket was given t...
- Margo Giving Matthew his TreatmentMargo, Matthew�s...
- Family NewsMy Cousin Stacey, Auntie Donella & Uncl...
- Early this morning Terri Called Rhoda, Matthew�s n...
- By the way, here is a picture of Marci, Paul, Alli...
- First Day on VapothermAfter much lobbying by Terri...
- Dr. Conrad listens to Matthew�s lungsDr. Carol Con...
- First thing this morning we were told that Matthew...
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September
(89)
1 comment:
At Michael's request, I tried really hard not to go "oooh" as he was inserting the feeding tube. I'll have to say, he really did a good job and I only had to put my hand over my mouth once.
Love, Mom
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