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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
5 comments:
What fun!!!
Matthew just loves to go for a ride on the ATV. As I look at this picture I can just hear him laugh and feel his enthusiam.
Well I certainly love this picture. I love seeing pictures of Michael and Matthew having fun. He is growing up so quickly and gets cuter every day.
Wish I could hear the laughter.
Love Mom/Grandma Sue
Please help usMy wife and I gave birth to a new born baby girl (Ruby) on July 20th (a couple days ago), and she was diagnosed with the same problems talked about in this article: http://www.viewnews.com/2005/VIEW-Dec-14-Wed-2005/SEast/4678919.html By ANGIE PARKINSON.
Our baby is in the NICU at Children's Hospital in Milwaukee and is stable, but will require the same surgery mentioned in the article. She is missing her pulmonary artery completely, and also has several holes in the heart that have blood flowing through. We are seeking help and trying to reach out to the King family of that article. Could you please provide their information, or please pass our information on to them?
Ruby's diagnosis
Ultra high risk surgery or death. 1) tetralogy of fallot, 2) pulmonary atrasia/intractable ventricular septum, 3) MULTIPLE PDA valves. Disease factor 3 ironically is keeping her alive temporarily.
~Dan & Kerry Tylenda-Emmons
414-350-1612.
Singletton.instance@yahoo.com
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