The Three of us went to Utah this weekend with Grandma & Grandpa Wright. The weather was beautiful so Matthew got to go on several long walks with Mommy & Grandma.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
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2006
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October
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- The Three of us went to Utah this weekend with Gra...
- Matthew is on the verge of walking on his own. He ...
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- Ever since he came back to Las Vegas, Casey has be...
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- Matthew weighed in this morning at 22lbs 5 ounces ...
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- Matthew has a couple molars coming in so he has be...
- Here you can just make out two lines of drool runn...
- Some of you may remember this outfit that Matthew ...
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- What a difference 8 months makes! Matthew was swim...
- Matthew loves book time. When Mommy reads to him s...
- When Matthew's books call for us to sing he gets a...
- Look at Matthew smile at the lights in his favorit...
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October
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2 comments:
Matthew absolutely, without a doubt, is going to be an outdoors man. Mommy and I walked for over an hour and Goo Man never closed his eyes. He didn't want to miss a thing. I thought for sure he would fall asleep; but not this little fella.
He jabbered away at his dad as he watched his daddy cover his backhoe. I think dad got the cover on right because Matthew was smiling after it was over. What a happy little boy. Matthew is a joy to be around. Love you sweet baby! grandma w
He definitely looks happy, and who wouldn't be when you are in God's Country. That is such a great get-a-away for all of you. I love all the pictures.
Love, Grandma Sue
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