Matthew got his own private waiting room at Dr. Tenby's office this morning. The traditional waiting room is hazardous to his weakened immune system.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2005
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October
(117)
- On Sunday, the "King Trio" trekked down to Uncle K...
- Here is a perfect smile to start your morning.
- Matthew's hands are never far from his face.
- Six days old.
- As a newborn premie.
- Even in utero
- Matthew and Sunny don't know what to make of each ...
- Sunny gets jealous as Mommy kisses Matthew.
- Terri carries Matthew to bed.
- The gnawing of the fist is a sure sign my boy is g...
- Bedtime is quite an operation. First Matthew gets ...
- Smiles like this one may become rare in the next f...
- "Decreasing my Meds?...What you talkin' bout Daddy...
- Matthew wasn't too sure about being in his swing t...
- Mommy reassures Matthew that the swing was built f...
- Matthew looks on as Mommy and Daddy clap for him.
- Dr. Mayman gave Matthew a very thorough Echocardio...
- Matthew slept until 5am again. First thing this mo...
- To the left you can see Matthew's overnight feedin...
- Matthew getting his bath this morning.
- Grandma Wright says kids don't like baths.
- We swaddled Matthew in his hooded bath towel to dr...
- Matthew was all smiles at his doctor's visit early...
- Matthew got his own private waiting room at Dr. Te...
- Matthew and Dr. Michael Tenby (his Pediatrician) o...
- Casey and Matthew say hello.
- Big brother Casey giving a breathing treatment.
- During game three of the World Series, Terri & Aun...
- At the end of a long day Terri and Matthew share t...
- Mommy gives Matthew his breathing treatment. The t...
- Matthew did great overnight. He slept from 9pm unt...
- Matthew wasn't all that impressed with his swing. ...
- After his feeding, Terri "vents" Matthew through h...
- Mommy gets Matthew ready to watch the Monday night...
- Homecoming Day...Daddy heads into the hospital wit...
- Amy & Daddy strap Matthew into his rocket chair.
- Matthew & Amy say goodbye. by the way, his hat say...
- Loading onto the elevator.
- The trip down to the ground floor.
- Matthew & Dr. Riedel on the way out of the Childre...
- Preparing for take-off.
- Matthew & Mommy in the back seat.
- All secured in.
- The ride home.
- Matthew, Daddy, and Aunt Kim on the ride home.
- Heading for the front door.
- Matthew posing with Mommy & Daddy.
- Crossing the threshold.
- Gazing at Aunt Gabrielle.
- Matthew & Daddy discovering his room.
- Checking out his crib.
- Matthew, Daddy, & Grandma.
- Glad to finally be home.
- Matthew and Grandma.
- Grandma Wright blowing Matthew a kiss.
- Seated in his Bouncy.
- Just the boys...(on the couch watching the game).
- Thankfully the blood sugar fluctuation was just a ...
- Terri and I have seen quite a few families leave t...
- The little red Clifford dog in this picture is act...
- As usual, the drama never ends. Terri just called ...
- Terri was very busy yesterday. She administered al...
- Today is our 4th wedding anniversary! In a couple ...
- Terri and I spoke with Dr. Mayman, Matthew's famou...
- Terri and Matthew playing "Patty-Cake".
- Matthew tries his best to keep his big head steady...
- Taken earlier this afternoon, this is now one of m...
- I must kiss him 100 times a day he is so cute.
- Is this the "New Zoo Review" or Matthew's bed? Tha...
- More bottle timeMatthew eats so fast that we have ...
- Today the doctors told us that Matthew may come ho...
- Matthew was in one of the best moods I've ever see...
- Matthew's infectious smile.
- You would never guess from this picture that Matth...
- This is the first bottle feeding I've given since ...
- Being so cute is hard work
- Terri and I were talking this morning and wanted t...
- Aunt Kim got to feed Matthew his bottle last night...
- Terri feeds Matthew by bottleToday Terri got to fe...
- The suffering Matthew endured yesterday overshadow...
- As stated below Matthew's story aired today on loc...
- Sorry for the short notice. I just got a text mess...
- I just received a call from Terri. She is at Matth...
- This morning Terri, Matthew, and I were visited by...
- "Oh the pressure of on-air interviews."
- Of course Matthew immediately stopped crying when ...
- Last night around 10pm Avner & Trish Klein were bl...
- In the next eight pictures I thought we could reca...
- As a "Grower and a Feeder" awaiting surgery, Matth...
- My little Patriot!
- July was a tumultuous month ending with Matthew's ...
- In August they closed his chest and the healing be...
- Early September brought the famous "Race Car Outfi...
- This one is so cute I couldn't resist. We were alm...
- Now we are in to October...And the Month is still ...
- Matthew is off of Vapotherm and on a Nasal Cannula...
- Now that's more like it!Eat your heart out Uncle K...
- Matthew is tolerating his feeds very well. During ...
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October
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1 comment:
We were thrilled that Dr. Tenby made sure we didn't have to wait in the waiting room.... lots of sick kids in there....
Thanks Dr. T!!
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