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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
7 comments:
He's so cute...
he has a comfort sucker in his left hand....
a lady in the elevator said to him, "aww, you are so brave"... and he looked up at her with those puppy dog eyes, holding his little arm...
I would be holding my arm too! I hate injections.
He is adorable... and looking so much better too.
Gosh he looks so grown up in this picture. He is always dressed so cute. It hurts to see him having any pain, but hopefully this will keep him healthy all winter and beyond.
I love you Matthew. Grandma Sue
The next day I asked Matthew where he got his shot and he held the "other" arm. Ha ha Thank God he has had both the H1N1 shots he needs. I've had both my regular and H1N1 shots and hope I am ready for this years flu season. Just want to do my part in helping to keep Magoo healthy this winter. He had such a bad summer.
WOW! He looks amazing!!! This is Sandra (one of his original nurses from Summerlin hospital) It's been a long time...too long. Life has changed and we're now in Colorado. Please contact me at skmartinez@comcast.net I'd love to hear from you!!!!!!!
I can't believe how grown up he looks!
Oh that precious baby!! But thank God he's NOT a baby anymore. Magoo is growing into a fine, young man!! Still haven't given up the dream of meeting all of you someday. WOW! It's been quite a journey since crabby discovered your blog. Love you, King Family!
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