Matthew is doing great ... now.... He was pretty sick a couple weeks ago up in Beaver. He was put back on Oxygen 24/7... but that only lasted a couple days... then he was on 02 only at night... now he's off...they think he was just starting to get pneumonia again in that left lung. He was given 2 Rocephine shots and that seemed to take care of it. His SATS were only 84 -85 for a couple days... yikes.
Needless to say, we are taking him in tomorrow for the H1N1 vaccine tomorrow.
We are also back to being "bubble boy" for the winters. Won't be taking him out into the public at all.... or other kids. Swine seems to be everywhere...even in Beaver school.
Hoping for a better winter than we had this summer!! I don't know!!
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
2 comments:
You'd think he would be sicker over winter wouldn't you? I hope he shines through winter!
I'm so glad to hear that he is doing so much better. Thank God you took him in before the pneumonia took hold. It's been a crazy time for colds. I still have a mild cough left after 3 weeks.
Before I come to visit I will make sure I have no sign of a cold. I feel so bad that you have to keep him in all winter.
I love you all so much and pray that we all stay healthy.
Grandma Sue
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