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Wednesday, October 06, 2021

Waiting to go home

Posted by Terri@SteelMagnolia at 10/06/2021 02:25:00 PM 1 comment:

Thursday, September 30, 2021

September 2021

Posted by Terri@SteelMagnolia at 9/30/2021 05:26:00 PM No comments:

Tuesday, September 21, 2021

Matthew & his heart surgeon

Matthew and his surgeon Dr. Ciccolo
Posted by Terri@SteelMagnolia at 9/21/2021 11:01:00 AM No comments:
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Matthew's Blog

One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.

First picture

First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old

Day of birth ~ May 10th, 2005

Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks

Day of first surgery ~ July "05

Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley

After first surgery

After first surgery
Chest was open for 4 days ~ hence the gauze on top

Chest was just closed

Chest was just closed
Still on a ventilator (remained on vent for another few weeks)

BiPap mask

BiPap mask
Mask would assist him to breathe in and out

Getting ready for second surgery

Getting ready for second surgery
Waiting for the surgery team to take him off

After second surgery

After second surgery
And still he smiles...

Leaving Stanford after second surgery

Leaving Stanford after second surgery
Happy day ~ Look no oxygen!

Happy Days

Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.

His second open heart surgery at Stanford was March 16th of 2006.

We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.

He's our amazing little soldier boy. Our miracle.

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Stories on Matthew

  • CNN special
  • L.V. RJ article 02-08-08
  • Solomon's Choice ~ Health insurance has it's limits.
  • L.V. Sun Article
  • Southwest View
  • L.V. Review Journal Article
  • "I Love" video
  • Matthew's Story on Congenital Heart Information Network
  • KVBC story w/ Beth Fisher

Followers

Contributors

  • Auntie Kim
  • Grandma W
  • Michael
  • Terri@SteelMagnolia