This is for the newcomers to Matthew's blog.
A brief story of Matthew's life with some pretty sweet pictures of him.
Click on the link below.
http://tchin.org/portraits/matthew-9.htm
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
(185)
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February
(30)
- Standard Baby Faces
- The Face
- If it's not one child...
- Baclofen seems to be working!
- Early morning pre-op
- Post-op
- Have you ever been this tired?
- Endoscopy update
- Endoscopy today
- Quick Baby Surgery Update
- Matthew's test results
- Mason Manning in surgery NOW
- Lincoln Carter getting a heart transplant tonight!
- Endoscopy scheduled
- Happy Valentines Day
- Matthew's Gastric Emptying Study
- Another test tomorrow
- The Las Vegas Coffee Party!
- He's in the Jail House now...
- Inseparable...
- Pious or Ghostly?
- A Head Above the Rest
- A special week to recognize people born with heart...
- Matthew's portrait
- Baby Mason Manning is born on Feb. 7th
- Just in case you Wondered...
- Home Improvement
- The Carnivor
- The Daredevil
- The Button Pusher
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February
(30)
8 comments:
My goodness...What a story! And such a strong little man.
I am so happy that he is doing so well...A miracle baby is right!
Thank you for sharing such a wonderful story. I hope to hear more good stories like this from beautiful Matthew and his gorgeous parents!!!
I have read this story before, but I still love it. I hope you get the opportunity to put your story out there for the nation to see!
I've enjoyed reading all the sites you have on your email footer. He's such a beautiful miracle baby! You are all an inspiration!
No matter how many times I read this story, my eyes fill with tears of joy and relief that we have Matthew today.
Matthew's mellow disposition is a sub-miracle after all his pain and suffering. It's hard to believe this is the same little guy helping daddy install things and taking control of the TV/Video entertainment via remote and equipment wise.
There is never a day that goes by that both his grandmothers don't "Thank Almighty God" for the Miracle of Matthew. He is an unbelievable "joy" in our hearts.
Love you my sweet little 20 month old "light of my life". grandma wright
Terri, what a miracle baby! I'm glad he's doing well.
Thanks for visiting my blog, by the way!
OH Terri...wow. WOW. What a champ! WHAT A CHAMPION!!! HOORAY! HOORAY FOR HIS FIERCE SPIRIT!!!
Matthew rocks. That whole lot of hero, wrapped up in that little boy...
It's humbling, to say the least.
And Bravo to you and Michael for your own fierce spirits!
His story is amazing Terri. I'm so glad that he's doing better. What a great little boy!
What an incredibly beautiful story. I have a two month old and I cannot believe how much you have been through. Your boy is gorgeous!!! Keep doing what you're doing. Your strength is refreshing and admirable!
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