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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
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January
(39)
- Play'in in the Yard
- Working Out
- Play Time
- Anatomy of a Fit
- As with all the ladies in this family, a periodic ...
- I Love...Improved Version
- Diaper Man!
- On Sunday, Matthew was enthralled with his set of ...
- No title
- Ride'em Cowboy!
- Auntie Kim Stopped by to get her "Matthew fix" whi...
- Quixa's Collar
- It has been rather cold in the mornings here (for ...
- The Crib Atrocity
- We love comments!Seeing "comments" on the blog is ...
- Splish Splash
- Legislation UpdateIt's been two months since we re...
- Matthew is quite the little explorer. We try to le...
- This is a CDC Alert!!!The recent wave of below fre...
- Matthew's GI specialist appointment Mom and I met ...
- This is the maple crib that Mike made for Matthew ...
- To Nancy (and those who are wondering): I bought t...
- Matthew has developed an affinity for pulling off ...
- Here you can see him pulling off the sock before p...
- Matthew and his GI issues.We haven't talked about ...
- A Day at Grandma's Mommy brought Matthew over to G...
- You can have the "slideshow" below go faster by cl...
- I am testing this slide show feature with past pi...
- Grandma Sue sent this picture of me when I was Mat...
- Sunday morning, in what is now a joyful routine, M...
- Cousin Daniel welcomes Matthew. Though not shown, ...
- Auntie Gabrielle provides the calming influence of...
- To eat, or not to eat. That was the question. Like...
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- No title
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- Auntie Kim gave Matthew a big hug for his gallant ...
- After a morning of football it was time to head to...
- ...New Year's 2005.
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January
(39)
13 comments:
Thank's "Mamma" for the image...
(I stole it from her blog):-)
Very cute video!!! I love the drum set!!! Matthew looks GREAT; I hope he is doing well!!! Thanks for always posting comments on Lincoln's blog; it is very encouraging!!! Love you guys, Kristen
Kristen's adorable baby, Lincoln has been in the hospital for 7 months (AWAY FROM HOME)... waiting for a heart transplant. He's only 7 months old... and such a doll.
www.littlelincolncarter.blogspot.com
My answer is: "Would it kill ya to put up a tagboard?"
ROFL!!!
Terrie,
I have been reading through your old posts, and I must say you are an AMAZING woman! I can not begin to put into words how moved I have been by all your experiences. I can not even imagine the difficulty it must be to watch the love of your life suffer so! However, it looks like he is having himself quite a time these days! I am SO glad I found your blog. You really put a lot of things in perspective for me! I will continue to pray for you and your husband....and ESPECIALLY that DARLING little man!
Terrie,
I have been going through some of your past posts and Matthew's story is amazing! It is difficult to put into words how much your struggle has touched my heart. Seems to be a little perspective on life! May God bless you and your beautiful family!
By now you have observed that I am not a woman of "few words". LOL
I make it a point to comment on the pictures in Matthew's Blog because I know that someday Matthew will be reading them. He will know then how much I took the time to love him while he was growing up.
Join us during this adventure in time and be counted as among Matthew's many beloved friends. Just think of it as "making history" happen.
Besides, I don't want to go down in his history as hogging the Blog. chuckle chuckle... I actually love seeing your coments as much as Terri and Michael do. Join Us, ya hear! grandma wright
Nancy,
you know I'm still pushing for that "chatbox" wink wink!
I know, Terri, that's one reason I said it! hehe... chatboxes are fun!
We're trying to put on a chatbox..
but it's messing things up on the blog... not matter what we do!
NO matter what we do...
Q of M,
Thank you so much for the very nice and touching comment...
but really, I'm not amazing at all ... you would have done all the same things we've done...
The amazing one is truly Matthew... after all this baby has been thru ... and he still has the greatest disposition! He's just a joy and such fun.
Thank you again.. it meant a lot to me.
It is so fun to think of new things to say and be a part of the ever-growing group of people putting our feelings into words for all to see. This has been a life-long experience since day one when our baby Matthew enriched our lives with his bravery and perseverance throughout all he has been through. We all love him so much and pray that his life will always be happy and full of new adventures. He is truly a gift from God. I love my Son, his beautiful Terri and precious Matthew and thank them for giving me my life's wish.
Grandma Sue
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