The weather was so nice on Monday that we all ventured outside to play in the backyard.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
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January
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- Play'in in the Yard
- Working Out
- Play Time
- Anatomy of a Fit
- As with all the ladies in this family, a periodic ...
- I Love...Improved Version
- Diaper Man!
- On Sunday, Matthew was enthralled with his set of ...
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- Ride'em Cowboy!
- Auntie Kim Stopped by to get her "Matthew fix" whi...
- Quixa's Collar
- It has been rather cold in the mornings here (for ...
- The Crib Atrocity
- We love comments!Seeing "comments" on the blog is ...
- Splish Splash
- Legislation UpdateIt's been two months since we re...
- Matthew is quite the little explorer. We try to le...
- This is a CDC Alert!!!The recent wave of below fre...
- Matthew's GI specialist appointment Mom and I met ...
- This is the maple crib that Mike made for Matthew ...
- To Nancy (and those who are wondering): I bought t...
- Matthew has developed an affinity for pulling off ...
- Here you can see him pulling off the sock before p...
- Matthew and his GI issues.We haven't talked about ...
- A Day at Grandma's Mommy brought Matthew over to G...
- You can have the "slideshow" below go faster by cl...
- I am testing this slide show feature with past pi...
- Grandma Sue sent this picture of me when I was Mat...
- Sunday morning, in what is now a joyful routine, M...
- Cousin Daniel welcomes Matthew. Though not shown, ...
- Auntie Gabrielle provides the calming influence of...
- To eat, or not to eat. That was the question. Like...
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- Auntie Kim gave Matthew a big hug for his gallant ...
- After a morning of football it was time to head to...
- ...New Year's 2005.
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January
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14 comments:
Is this the same little boy who was tied down with tubes, canulas and kept on his back for almost a year because of medical needs?
You certainly couldn't prove it by these pictures of a little boy so in tune with "Mother Nature". Matthew loves the outdoors, the same as his daddy and mommy. It is wonderful to see that he has broadened his horizons to the backyard and fresh air. Quixa seems to be thrilled to share "her space" with Matthew.
Mommy and daddy filled in a beautiful pond with fish in this same backyard, while Matthew was getting well, in preparation for these moments.
Daddy planted a Sycamore tree in Matthew's honor when Matthew was born. It will be fun to watch them both grow.
Thank you for sharing these fun filled, happy moments. Watching Matthew's adventure certainly warms my heart. Love you sweet little mountain man.....grandma wright
Aww. Just toddling around the yard. VERY cute!!
Terri! Don't stir the pot! I don't believe how CUTE Matthew looks in red!!!! ;-)
Hugs! And thanks to you if you were the one who got the heart parents over to my blog to give me encouragement about tomorrow's doc appointment!
Your funny comments and cheerful attitude are keeping my spirits up! Thank you!
Terri- It's because I'm UNBELIEVABLE!
Great shots BTW!
Matthew looks so adorable in red!!!
What a nice looking boy you folks have got. A real blessing!
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