As with all the ladies in this family, a periodic "Matthew fix" is a mainstay of life. Here, Auntie Gabrielle stops by for hers and takes the occasion to rock Matthew to sleep.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
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January
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- Play'in in the Yard
- Working Out
- Play Time
- Anatomy of a Fit
- As with all the ladies in this family, a periodic ...
- I Love...Improved Version
- Diaper Man!
- On Sunday, Matthew was enthralled with his set of ...
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- Ride'em Cowboy!
- Auntie Kim Stopped by to get her "Matthew fix" whi...
- Quixa's Collar
- It has been rather cold in the mornings here (for ...
- The Crib Atrocity
- We love comments!Seeing "comments" on the blog is ...
- Splish Splash
- Legislation UpdateIt's been two months since we re...
- Matthew is quite the little explorer. We try to le...
- This is a CDC Alert!!!The recent wave of below fre...
- Matthew's GI specialist appointment Mom and I met ...
- This is the maple crib that Mike made for Matthew ...
- To Nancy (and those who are wondering): I bought t...
- Matthew has developed an affinity for pulling off ...
- Here you can see him pulling off the sock before p...
- Matthew and his GI issues.We haven't talked about ...
- A Day at Grandma's Mommy brought Matthew over to G...
- You can have the "slideshow" below go faster by cl...
- I am testing this slide show feature with past pi...
- Grandma Sue sent this picture of me when I was Mat...
- Sunday morning, in what is now a joyful routine, M...
- Cousin Daniel welcomes Matthew. Though not shown, ...
- Auntie Gabrielle provides the calming influence of...
- To eat, or not to eat. That was the question. Like...
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- Auntie Kim gave Matthew a big hug for his gallant ...
- After a morning of football it was time to head to...
- ...New Year's 2005.
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January
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4 comments:
Yep...
he was as happy as a bug in a rug.
Well..... until she tried to put him in his crib.
Too bad I don't live closer so I can get a "Matthew fix" too! I just love the little guy even though I've never met him in person.
If you are ever in Southern Arizona you'll have to come by!
Another person who understands that Matthew just needs a hug sometimes. He plays hard and works hard at learning new things and smiles for all those pictures.
We all know that most of Terri's wonderful disposition is what we see in Matthew, but the 2's are coming fast.
I love you so much Matthew.
Grandma Sue
"READ, READ, READ ALL SBOUT IT!""
The two's are here; but in a healthy maturing sort of way. Matthew plays, walks and loves so hard, that all of a sudden his energy level just plummets. Life is hard for "everyone" when they are tired.
Daddy is right, all the women in the family need a "Matthew fix" often SO there is plenty of "love" to go around and around when the mood hits. Matthew is very independent; but always has a moment for his fans. What a love!
Matthew returns that love and then some. That boy does like to rock, and it is very soothing and quieting for him. With his "don't fence me in" personality, the ole crib does seem a bit confining; but a necesary haven for our little guy and the parents.
For all Matthew has been through, he seems to just slide into each phase with the greatest of normal ease. Look at that precious little face...... I think he is looking at Mr. Sandman and performing a "silent" protest. Sounds like Matthew won......hee hee
Love you sweet little boy, grandma w
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