In the end he ate some of his food with little protest. He even seems to be processing the taste rather than just enduring the whole experience.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2006
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April
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- Matthew and I volunteered our services to the Knig...
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- Earlier this week I took Matthew for a ride in his...
- This is Dr. Asadifar, the Neonatologist who cared ...
- This is KiKi who was Matthew's NICU nurse at Summe...
- After our visit with the Summerlin NICU Staff Matt...
- Just before he got another shot at Dr. Tenby's off...
- Terri is so happy with Matthew's progress. It is s...
- ...Like laundry. Oh well, no one ever said our lif...
- "Hi, Uncle Jerry? Hey it's Matthew. Can you send y...
- Matthew looks as if the red lights and siren of a ...
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- Momma-razzi caught up with our Little Hero and Aun...
- Matthew looks like such a big boy in his new "big...
- There are many more pictures to come but I had to ...
- Hanging from my shirt is our parrot Amie. She has ...
- Sunday was truly a day to celebrate, because the ...
- Today was bathtime. Terri says that Matthew has "p...
- On his cheek you can see some tissue breakdown. Ma...
- After a week long training seminar, it was great t...
- On your marks, get set, grab a toy!
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- Hard play is followed by power naps.
- Happy Easter everyone! This year we were fortunate...
- Grandma & Grandpa Wright arrived early to get the ...
- When Matthew woke up from his nap he was a little ...
- It was great to watch uncle Keith laugh as Matthew...
- Matthew was quite content in his Jeep today. He is...
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- Matthew and our dog Quixa get to associate under d...
- There are certain milestones in parenting that you...
- Auntie Kim bought Matthew this interactive book. I...
- Those of you that have been tracking the Blog know...
- Terri moved in with the spoon.
- In the end he ate some of his food with little pro...
- Terri is consistent and persistent with Matthew's ...
- Though just for a fleeting moment, Matthew held hi...
- Matthew is returning to his old self. The last few...
- Matthew has a colorful wooden rosary that hangs fr...
- After several moments of study the rosary went rig...
- Terri is the best physical therapist Matthew could...
- After tummy-time Terri put Matthew on the floor an...
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- Matthew got so much use out of his bouncy chair th...
- Matthew's big brother Casey is moving to Chicago t...
- Matthew is experiencing a drug interaction that ma...
- This picture was taken today in black and white b...
- Matthew was so enthralled by the Baby Einstein vid...
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- While not crying as much or exhibiting behavior li...
- The week finally caught up with Terri and I. All t...
- Right on que, the new swing that Grandma Wright bo...
- Matthew was a different boy this morning after jus...
- I had to laugh at the way this picture turned out....
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April
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3 comments:
What a laugh I had at this picture. I love how the food is on his forehead and just above his right eye.
He's really processing this. "Do I like this or not"? He has so many expressions. What a kick.
Love, Grandma Sue
WELL.. AS OF TODAY..
HE'S STILL NOT REALLY WANTING TO EAT BABY FOOD... NO MATTER HOW YUMMY...
AND HE'S STARTING TO NOT WANT HIS BOTTLE AGAIN...
THAT STARTED YESTERDAY TOO...
HOPE IT'S JUST TEMPORARY..
TERRI
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