Matthew is experiencing a drug interaction that makes him very agitated. He is still not sleeping very well, though better than earlier this week. We think it is caused by the Albuterol (breathing treatment) and the steroids he's taking for his lungs. He seems very hungry or thirsty, probably from the diuretics. He used to fall asleep within minutes of being put to bed. Now it takes him hours. He cries until his mouth is so dry that we must give him pedialyte to calm him down (while wetting his whistle). Matthew used to behave quite differently and we are struggling with his new behavior.
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It is very sad for us... Matthew is a different baby right now... He is just not happy at all ... he always seems frantic and so upset.... We rarely see him smile or seem comfortable. We start another wean tomorrow, to get him off the steroids... and by Tuesday he should be off completely... maybe then he'll start getting back to his old happy self... He used to be so cute the way he just fell asleep after we put him to bed... and he would sleep overnight... but now.. he just cries and cries.... so sad.
I'm hoping that once he is off so much medication, it will make things better for all of you. Not getting enough sleep is hard on him and well as Terri & Michael. We all just want our little boy to be happy and playful and enjoy the good life.
I love you all so much. Mom (Grandma Sue)
Hey guys! I'm so sorry to here Matthew's still having a tough time. The combination of Albuterol and steriods can be tough. I've taken steriods in the past and felt VERY on edge, jittery, like my skin was crawling...I can't imagine how bad it can be for a little one! Unfortunately, he needs it so try to hang in there! You're doing a great job...Matthew's so lucky to have you watching over him! Stay strong Terri and Mike!
Melanie Merrill
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