We arrived at the hospital at 6am. Matthew was in typical, great spirits this morning as we waited for surgery.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2006
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March
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- Terri just called and said the doctors have releas...
- As if Matthew isn't already feeling bad enough, he...
- This has been the hardest week yet for us. Terri a...
- Even with the contractors running rough-shot throu...
- Auntie Kim has been stopping by every night to kee...
- Tonight Terri told me that she was soooooo tired l...
- Matthew has been very sick little boy since last S...
- We just learned that the doctors traced the source...
- Matthew is so used to the nebulizer being in his f...
- Matthew spiked a fever of 101`F Saturday afternoon...
- Matthew's nose must be bothering him because he is...
- Because his sternum was cut down the center of his...
- Auntie Gabrielle came over this morning and helped...
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- As always, we warmed Matthew's bath towel in the o...
- Matthew has outgrown his cute little wooden bassin...
- Once again Matthew was wide awake and waiting to g...
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- Rosalie was the Nurse Practitioner filling in for ...
- Once released the King Trio posed for this photo.
- Grandma Sue arrived at the hospital first thing th...
- This is Pam Bustamante. She is the lifeline betwee...
- Before leaving we walked downstairs to the CVICU f...
- We made it home to Las Vegas safe & sound. We put ...
- Matthew was sitting up like a big boy but decided ...
- Melanie is Dr. Hanley's Physicians Assistant. She ...
- Matthew got to take a red wagon ride to his Lung p...
- Matthew wasn't too happy at first when they velcro...
- After they strapped him in his little blue straigh...
- Once inside the drum, these two sensor plates clos...
- To a child, this whole ordeal might seem like some...
- Grandma Sue came over this afternoon. She got to h...
- Connie was one of Matthew's Respiratory Therapists...
- Matthew was wide awake at 7am this morning when we...
- Matthew was hamming it up for the camera with this...
- Matthew's face was so happy and expressive today. ...
- "Bond. James Bond."
- Matthew has become fascinated with my coffee mug. ...
- Dr. Gail Wright was there for us last summer durin...
- Since Matthew's surgery, he is eating so well that...
- Johnny stopped by today to bid the King Trio farew...
- Matthew had a busy day today. His chest tubes were...
- First thing this morning Katelyn and Dr. Amir remo...
- Matthew doesn't hold a grudge. A few minutes after...
- Dr. Gabriel Amir is one of the Cardiothurasic Surg...
- Jerry is one of Matthew's Respiratory Therapists. ...
- Agnes was our nurse right after Matthew got a Stap...
- Verlene is a volunteer who spends her free time pl...
- Andrea, one of Matthew's Respiratory Therapists, s...
- With his chest tubes out it was much easier to hol...
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- Once his room was cleaned and ready, Katelyn and I...
- This is Matthew's new room in "3 West" more common...
- Even though she had worked all day, Raji still wai...
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- I addition to our loved ones (our friends, family,...
- Matthew had his chest bandage removed today and yo...
- This is what Matthew's scar looked like the first ...
- Mommy and Grandma Sue kept Matthew entertained all...
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- Look at our little bruiser holding his own bottle ...
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- This is Sheryl who took care of Matthew all weeken...
- Vicky is one of the head Respiratory Therapists. S...
- This is Jing who took great care of Matthew at nig...
- When I came in this morning Matthew was flirting s...
- Sara Kache is a wonderful doctor. Secure and confi...
- Matthew has more lines coming out of him right now...
- A byproduct of Matthew's pain medications is a per...
- When was the last time you slept this soundly?
- Grandma Wright and Auntie Kim were cheering Matthe...
- Margo introduced us to her man Hank and we all had...
- These are our friends Dan & Lucy Jiang. They came ...
- Even after our lunch Matthew was still sitting up ...
- This is Tracy Pablo. Tracy and Dorothy were the nu...
- This is the front of Lucille Packard Children's Ho...
- Above Matthew's head you can see the cutest little...
- One of the nurses drew the sweetest little heart o...
- Carolyn, The lead Chaplain, came by every day to h...
- Sandy, the Nurse Practitioner, Annie and Marsha hi...
- To clear the mucus that collects around the tube, ...
- After the endotrachial tube came out of his throat...
- Always the optimist, Jerry cheered Matthew on.
- Matthew sounded wheezy so Sandy gave him a quick b...
- Keeping Matthew calm enough to breath is essentail...
- I bent down to sing to Matthew in the most soothin...
- After ten minutes of controlled & fluid chaos, Mat...
- This is Dr. Frank Hanley the man who saved my son'...
- Of course this will forever be how we see Dr. Hanley.
- Katelyn was one of Matthew's nurses this summer. S...
- Matthew's ear plugs helped shield him from the com...
- There were no smiles from Matthew today. Just quie...
- Lupe is Stanford's top Case Manager. He was there ...
- Imagine being so little an innocent. There is no w...
- Pray your child never gets sick. But if they do, p...
- After 7pm Matthew was doing well enough to drink s...
- To soothe him, Terri rubbed Matthew's temple in be...
- We left Matthew tonight in Christine's capable han...
- We arrived at the hospital at 6am. Matthew was in ...
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March
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1 comment:
Ever since Nesi (Denise B.) started forwarding me updates so very long ago, I've been praying for you nightly. You've been through so much. Last June, I was diagnosed with breast cancer. Despite your even knowing it, you all have been inspirational to me, and your updates helped to not only keep me apprised, but they gave me strength and encouragement to fight my battle, as well. I'm still praying for you and wishing you the best. Thank you for sharing your journey with us. Please give little Whomagoo a hug for me. And one for yourselves, too.
With love and respect,
Cubby Conrad, Hanover, PA
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