
Monday, April 27, 2009
Sunday, April 26, 2009
Some cute pictures
Sunday, April 19, 2009
Friday, April 17, 2009
ECHO & EKG went great today
Friday, April 10, 2009
Monday, March 30, 2009
Monday, March 16, 2009
This is hysterical!
Matthew keeps removing a knob off our kitchen cabinet.
Yesterday, I walked up and saw that it was missing AGAIN. I asked Matthew,
"What happened to the knob Matthew?"
He walked up to the cabinet door ... looking very serious... his little eyebrows went together,
and he very quietly said:
"You broke it."
I almost died laughing!!!! He's never really answered me like that before. I loved it.
Yesterday, I walked up and saw that it was missing AGAIN. I asked Matthew,
"What happened to the knob Matthew?"
He walked up to the cabinet door ... looking very serious... his little eyebrows went together,
and he very quietly said:
"You broke it."
I almost died laughing!!!! He's never really answered me like that before. I loved it.
Saturday, March 14, 2009
Pictures I promised
Someone was having all kinds of doggy fun. *giggling* Look at that guilty face.
A Stanford sweatshirt Nurse Raji gave him. She cared for Matthew pretty much the entire time we were in the CVICU 4 yrs ago.Friday, March 13, 2009
3 years ago since Matthews second heart surgery
Wow... we can't believe it's been 3 years now.
March 16th marks the 3rd anniversary since Matthew's second heart surgery.
We pray that his leaky valve hangs in there ... we were told at Stanford that "on average", these kids need a conduit change every three years.
We have an ECHO appointment on April 17th.
I will be posting some cute pics that I took the other day real soon.
March 16th marks the 3rd anniversary since Matthew's second heart surgery.
We pray that his leaky valve hangs in there ... we were told at Stanford that "on average", these kids need a conduit change every three years.
We have an ECHO appointment on April 17th.
I will be posting some cute pics that I took the other day real soon.
Sunday, March 01, 2009
Okay okay
I will get some pictures of Matthew up real soon.
He is so funny...
he's singing this cute little song....
moo moo buzz buzz,
pop pop klop,
cock a doodle doo doo who who
dibble dibble dop,
tick tock knock knock
boom boom SPLAT!
last a whisper whisper
and THAT IS THAT...
from Mr. Brown Can Moo, Can You??
He is so funny...
he's singing this cute little song....
moo moo buzz buzz,
pop pop klop,
cock a doodle doo doo who who
dibble dibble dop,
tick tock knock knock
boom boom SPLAT!
last a whisper whisper
and THAT IS THAT...
from Mr. Brown Can Moo, Can You??
Thursday, February 19, 2009
Bill introduced to increase lifetime caps to minimum of 10 million
Lifetime Caps Bill Introduced On Friday, February 13, 2009,
Anna G. Eshoo(D-CA) and Jim Langevin (D-RI), along with Senators Byron Dorgan(D-ND) and Olympia Snowe (R-ME) introduced the Health Insurance Coverage Protection Act (H.R. 1085; S442).
I was so excited about this UNTIL Mike said it was a bad idea to mandate something like this... He said that it would then cost employers more money for the premiums. I hadn't thought of that. I do wish there were no such thing as a lifetime cap. Mostly because when you run out, you can't buy more (as we found out) due to pre existing clauses. So, what are you to do????
The legislation, introduced in both houses in 2008, will set a $10 million minimum lifetime cap on health insurance, with future increases based on inflation.
The National Hemophilia Foundation (NHF)played a vital role in encouraging the legislation and assembling a coalition of more than 50 patient advocacy and health organizations currently working for its passage.
“However, nothing could happen without the critical leadership of the members of Congress who recognized this problem and decided to do something about it,” said ValBias, NHF CEO.
“We applaud these leaders for identifying this critically needed piece of healthcare reform and moving it forward.”
On Thursday, February 26, 2009, more than 350 people affected by bleeding and clotting disorders will gather on Capitol Hill for our annual Washington Days advocacy event.
We will express our support for this important legislation and discuss other key healthcare issues with members of Congress and their staff.
“Having an inadequate lifetime cap defeats the purpose of health insurance and forces those with disabilities and chronic illnesses into an impossible situation,” Dorgan said.
“Low caps also end up costing the taxpayer because once people with illnesses hit their cap, they often turn to government programs for their care.
This legislation will raise lifetime insurance caps and allow those with illnesses to focus on recovering—not worrying about how they are going to pay for their treatment.”
“This bill addresses a critical lack of coverage for those with disabilities or chronic illnesses,” said Eshoo.
“It’s a travesty to think that people are job-hopping in order to switch insurance plans or quitting their job all together to access Medicaid.
Increasing the minimum lifetime cap will result in a net savings for federal and state governments because individuals with high medical costs can maintain private health insurance.
As medical treatment costs continue to increase, the issue of lifetime insurance maximums will become even more important. This legislation will protect individuals who are struggling to pay for the expensive medical treatments that are a result of disability or chronic illness.” NHF applauds the efforts of the bill’s sponsors and co-sponsors.
Anna G. Eshoo(D-CA) and Jim Langevin (D-RI), along with Senators Byron Dorgan(D-ND) and Olympia Snowe (R-ME) introduced the Health Insurance Coverage Protection Act (H.R. 1085; S442).
I was so excited about this UNTIL Mike said it was a bad idea to mandate something like this... He said that it would then cost employers more money for the premiums. I hadn't thought of that. I do wish there were no such thing as a lifetime cap. Mostly because when you run out, you can't buy more (as we found out) due to pre existing clauses. So, what are you to do????
The legislation, introduced in both houses in 2008, will set a $10 million minimum lifetime cap on health insurance, with future increases based on inflation.
The National Hemophilia Foundation (NHF)played a vital role in encouraging the legislation and assembling a coalition of more than 50 patient advocacy and health organizations currently working for its passage.
“However, nothing could happen without the critical leadership of the members of Congress who recognized this problem and decided to do something about it,” said ValBias, NHF CEO.
“We applaud these leaders for identifying this critically needed piece of healthcare reform and moving it forward.”
On Thursday, February 26, 2009, more than 350 people affected by bleeding and clotting disorders will gather on Capitol Hill for our annual Washington Days advocacy event.
We will express our support for this important legislation and discuss other key healthcare issues with members of Congress and their staff.
“Having an inadequate lifetime cap defeats the purpose of health insurance and forces those with disabilities and chronic illnesses into an impossible situation,” Dorgan said.
“Low caps also end up costing the taxpayer because once people with illnesses hit their cap, they often turn to government programs for their care.
This legislation will raise lifetime insurance caps and allow those with illnesses to focus on recovering—not worrying about how they are going to pay for their treatment.”
“This bill addresses a critical lack of coverage for those with disabilities or chronic illnesses,” said Eshoo.
“It’s a travesty to think that people are job-hopping in order to switch insurance plans or quitting their job all together to access Medicaid.
Increasing the minimum lifetime cap will result in a net savings for federal and state governments because individuals with high medical costs can maintain private health insurance.
As medical treatment costs continue to increase, the issue of lifetime insurance maximums will become even more important. This legislation will protect individuals who are struggling to pay for the expensive medical treatments that are a result of disability or chronic illness.” NHF applauds the efforts of the bill’s sponsors and co-sponsors.
Thursday, February 05, 2009
Wednesday, January 28, 2009
Saturday, January 24, 2009
Monday, January 19, 2009
Look at this smug mug
Monday, January 05, 2009
Saturday, January 03, 2009
A couple pics to hold you over until I can get the Christmas pics up
Thursday, December 25, 2008
Tuesday, December 23, 2008
A night at the Magical Forest
Just look at that face...he was grinning from ear to ear the entire ride!! When the carousel took off, I was surprised at how fast it was going... I was trying to hold on to Matthew w/ my left hand and the pole that was moving up and down with my right hand ... and I ALMOST FELL OFF!! LOL, I should have been on the other side, but as we went flying past Heidi, I said, "OMG I almost fell!" and she was laughing and said, "I know, I saw!!" There was only a small area for me to stand on.
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