Saturday, March 14, 2009

Pictures I promised

Someone was having all kinds of doggy fun. *giggling* Look at that guilty face.
A Stanford sweatshirt Nurse Raji gave him. She cared for Matthew pretty much the entire time we were in the CVICU 4 yrs ago.
"Dwamma" spoiled Magoo w/an awesome Mr. Potato Head. He has TWO, yes, TWO ~ one for our house and one for her house. This child wants for nothing.
These are real fun to step on. Yup... nice. It can give ya a case of Tourette's.
Daddy and Magoo playing on his chaulk board. Matthew loves to have us draw him a Magic Bullet. Goofy kid.
Matthew suckered Daddy into taking him for a spin around the block. He is hard to resist.

Off they go! He loves this red wagon.... yes, "Dwamma" got it for him.

Friday, March 13, 2009

3 years ago since Matthews second heart surgery

Wow... we can't believe it's been 3 years now.
March 16th marks the 3rd anniversary since Matthew's second heart surgery.

We pray that his leaky valve hangs in there ... we were told at Stanford that "on average", these kids need a conduit change every three years.

We have an ECHO appointment on April 17th.

I will be posting some cute pics that I took the other day real soon.

Sunday, March 01, 2009

Okay okay

I will get some pictures of Matthew up real soon.

He is so funny...

he's singing this cute little song....


moo moo buzz buzz,
pop pop klop,
cock a doodle doo doo who who
dibble dibble dop,
tick tock knock knock
boom boom SPLAT!
last a whisper whisper
and THAT IS THAT...


from Mr. Brown Can Moo, Can You??

Thursday, February 19, 2009

Bill introduced to increase lifetime caps to minimum of 10 million

Lifetime Caps Bill Introduced On Friday, February 13, 2009,

Anna G. Eshoo(D-CA) and Jim Langevin (D-RI), along with Senators Byron Dorgan(D-ND) and Olympia Snowe (R-ME) introduced the Health Insurance Coverage Protection Act (H.R. 1085; S442).

I was so excited about this UNTIL Mike said it was a bad idea to mandate something like this... He said that it would then cost employers more money for the premiums. I hadn't thought of that. I do wish there were no such thing as a lifetime cap. Mostly because when you run out, you can't buy more (as we found out) due to pre existing clauses. So, what are you to do????


The legislation, introduced in both houses in 2008, will set a $10 million minimum lifetime cap on health insurance, with future increases based on inflation.

The National Hemophilia Foundation (NHF)played a vital role in encouraging the legislation and assembling a coalition of more than 50 patient advocacy and health organizations currently working for its passage.

“However, nothing could happen without the critical leadership of the members of Congress who recognized this problem and decided to do something about it,” said ValBias, NHF CEO.

“We applaud these leaders for identifying this critically needed piece of healthcare reform and moving it forward.”

On Thursday, February 26, 2009, more than 350 people affected by bleeding and clotting disorders will gather on Capitol Hill for our annual Washington Days advocacy event.

We will express our support for this important legislation and discuss other key healthcare issues with members of Congress and their staff.

“Having an inadequate lifetime cap defeats the purpose of health insurance and forces those with disabilities and chronic illnesses into an impossible situation,” Dorgan said.

“Low caps also end up costing the taxpayer because once people with illnesses hit their cap, they often turn to government programs for their care.

This legislation will raise lifetime insurance caps and allow those with illnesses to focus on recovering—not worrying about how they are going to pay for their treatment.”

“This bill addresses a critical lack of coverage for those with disabilities or chronic illnesses,” said Eshoo.

“It’s a travesty to think that people are job-hopping in order to switch insurance plans or quitting their job all together to access Medicaid.

Increasing the minimum lifetime cap will result in a net savings for federal and state governments because individuals with high medical costs can maintain private health insurance.

As medical treatment costs continue to increase, the issue of lifetime insurance maximums will become even more important. This legislation will protect individuals who are struggling to pay for the expensive medical treatments that are a result of disability or chronic illness.” NHF applauds the efforts of the bill’s sponsors and co-sponsors.

Thursday, February 05, 2009

Wednesday, January 28, 2009


Isn't this soo cute... Spookie hung out w/ Matthew for about 20 minutes. I think she wanted that duckie.

Saturday, January 24, 2009



This was in 1965, Terri was 5 years old. The picture from left to right, is me, Danny and Terri. Please refrain from commenting on Terri's shoes... she hated them :)

Monday, January 19, 2009

Look at this smug mug

He was spending his last Sunday over at his Uncle Keith and Auntie G's house. Typically Mike and Matthew head around the corner to Keith's to watch football... but Keith moved to Maryland today.

Tuesday, January 06, 2009




THIS JUST IN...

Matthew has discovered his mouth.

Monday, January 05, 2009


This is from earlier today. Magoo's daddy let him wear this little headset. The problem... was that the antenna kept poking me in the eye!!!




Since Terri's not feeling well today and we're all STARVING for more of the little guy... I thought I'd post a couple of pics.

Saturday, January 03, 2009

A couple pics to hold you over until I can get the Christmas pics up

Mike and his very first squad... this is New Years Eve. Look how cute they all are!!
Matthew loves that cheese out of the can and peanut butter. He just picks the cheese off the cracker.

Thursday, December 25, 2008

Tuesday, December 23, 2008

A night at the Magical Forest

Just look at that face...he was grinning from ear to ear the entire ride!! When the carousel took off, I was surprised at how fast it was going... I was trying to hold on to Matthew w/ my left hand and the pole that was moving up and down with my right hand ... and I ALMOST FELL OFF!! LOL, I should have been on the other side, but as we went flying past Heidi, I said, "OMG I almost fell!" and she was laughing and said, "I know, I saw!!" There was only a small area for me to stand on.
He loved the snowman... there were teddy bears and doggies walking around too.
Here's a little balloon doggie w/ a leash.
He loved this kiddie slide!! Can you see his excited face??
Heidi and her two sons, one to the right of her and one wayyy down below.
There were firetrucks, ambulances and even police cars passing out stickers and candy canes.

Look what Grandma W bought for the little man.. he loves his rocking horses.

Saturday, December 20, 2008

Making Kool Aid Play Doh

Magoo and Ms. Dorina, his speech therapist. LOL, he kept trying to eat it.. you know how he likes "salty" foods... it was funny, he was taking big bites, not just tastes. It smelled good, like juice.




Thursday, December 11, 2008

Look at that face.... lol

He was making some strange sound w/ his throat... we were heading up to Beaver and he ate a package of Oreo cookie wafers.
Matt and his Uncle Russ. Russ was working the marathon down the street... and Matthew got busted "stroller speeding".... lol. We took Russ some cookies and hot coffee to get Matt out of his ticket.

Sunday, November 30, 2008

Oh how I LOVE THIS!!

*lol* Notice the contrast of our faces... one is gleeful bliss, the other... not so much.

Oh how I wish I'd had this alllll along.


A friend from Beaver is letting me borrow "the monkey" leash ...


I can actually stop and talk to someone now w/o Matthew running off like he does ~ he's just too heavy to hold all the time. Honestly, you can't take your eye off him one second up there... he could get lost very easily in the woods.


This sure makes it a lot easier to run back and forth to the cabin... OH MY...
I was just tickled pink when they handed it to me...


My sister Kim didn't like the idea one bit ... but, my Mom liked it too...
Now remember, Kim hasn't had kids and my mom has had four ... *smile*
so sheeee understands what it's like to chase after these monkeys all day long.
*LOL*

Some fun news

Matthew went up to Mike the other day and said, "poo poo" w/ a serious look on his face ...
Mike rushed him over to the potty chair and he pooped... wah hoo.

I did buy Matthew some "pull ups" the other day ... I will start setting the timer for 30 minutes and take him to the potty chair. We'll see what happens after a week.
I didn't know they came in boy or girl pull ups... I accidentally got him pink Dora pull ups...LOL... and it smells like powder.

This morning, Matthew ate a bunch of cut up grapes, apple, yogurt and oreo cookies.
He actually asks for "yo~dirt" and "gwapes" "eerio's" ... today he asked for "appo". I love it when he asks for "oreo tooties".

Things are coming along! We are so excited.

He also lets us know when he wants to watch Baby Noah, Baby Neptune, Elmo, Wiggle's,
and Nemo.

Friday, November 14, 2008

This kid and his glasses!!
He is so funny... really wondering what the heck daddy had on his face.

Friday, November 07, 2008

A walk to the park with "Dwamma"




He really wasn't interested in anything else... just wanted to push the stroller... and he wanted NO HELP from us... he would shove our hands off if we tried.

Saturday, November 01, 2008

New "Roadster" by Schwinn his "Auntie Tim" bought for him


Auntie Tim is really Auntie KIM. He can't pronounce his K's. His K's are T's.

Thursday, October 30, 2008

We love our mailman, Terry

This is Terry, our favorite mailman.. he's been so wonderful to us over the years. He really cares for Matthew ... and look what he brought to him a couple weeks ago!!

His very own USPS mail truck!!
He loves playing with the little door on the side that slides open. Thank you Uncle Terry!!!


I've been trying to spoil Terry lately with some home baked cookies ... soon it'll be cool enough for me to leave in the mailbox... but for now I must leave him notes so he can come to the door for his bag of goodies. I felt goofy yesterday b/c I was all grungy looking ... like a "momster".
I might have scared him! Oh wait... that's supposed to be saved for Halloween!!