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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
5 comments:
What wonderful news!!!!! Status Quo is good, especially when it is good and better than ever anticipated.
I love the pictures of our little hero. It shows you what a handsome dude he is these days. Mommy said that Matthew was the perfect patient. He didn't waste any time getting his shoes back on to go home, did he? He sat quietly during his tests which does help for more accurate results.
I told mommy that when they sat down for a celebration breakfast and Matthew saw that grandma wright wasn't there, he protested. Ha Ha. Can't celebrate without his buddy. I rarely miss an opportunity for chowing down with our little hero or going out to eatwith him. I would have today; but I got off to a slow start......... (a typical occurance since retirement).
Matthew has found a fondness for oreo cookies and cheetos by mouth. Those would have been my "starter" foods at age 2 also. Hee Hee
I watched him try to connect the hose to his mickey button the other day. Not much flavor in that. Oh well, it is "normal for him", remember.
Love you my little hero, grandma wright
This is wonderful news. The pictures are so cute. He looks so serious in some and then the smile breaks through. I really do believe that all the prayers from family and friends definitely help. He looks so grown up.
I guess by the time you got to breakfast he wanted none of that - just get me home. Too bad for Mommy & Daddy though.
I love all the pictures so much and can't wait to see all of you again.
Love, Grandma Sue
SO happy to hear this, you guys! We've been praying.
Phew!!!!
Such great news!!! He simply wanted an oreo, none of that other goopy stuff you'all eat.
Is he really eating oreo's and cheeto's??
Way to go Magoo, you are awesome!!!
love you,
antinesi
I'm glad to hear things are looking good. What a good boy during the echo. Luke is all over the place, he won't sit still. Cute little guy.
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