Matthew couldn't wait to help me hang Amy's new birdie-perch. We took a severe detour when the tape measure came out.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
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2007
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February
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- Standard Baby Faces
- The Face
- If it's not one child...
- Baclofen seems to be working!
- Early morning pre-op
- Post-op
- Have you ever been this tired?
- Endoscopy update
- Endoscopy today
- Quick Baby Surgery Update
- Matthew's test results
- Mason Manning in surgery NOW
- Lincoln Carter getting a heart transplant tonight!
- Endoscopy scheduled
- Happy Valentines Day
- Matthew's Gastric Emptying Study
- Another test tomorrow
- The Las Vegas Coffee Party!
- He's in the Jail House now...
- Inseparable...
- Pious or Ghostly?
- A Head Above the Rest
- A special week to recognize people born with heart...
- Matthew's portrait
- Baby Mason Manning is born on Feb. 7th
- Just in case you Wondered...
- Home Improvement
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February
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5 comments:
Daddy's little helper!!
"Tool Time Matthew" at work....
I love the one of him holding up the tape measurer in awe!
I love the new bird perch that Mike built... took about 5 or 6 Saturday's (I would guess about 40 hours) in the workshop to build that....
I wonder "how" the tape measure got broken. Hummmmmm? Matthew did look like he tried to tie it together at one point. Ha Ha
There is no doubt our man on the scene was eager to help daddy. With an entire house full of toys, daddy's tools are the most fun of all.
Amy appeared very happy today while jabbering and singing on her new perch. Matthew can no longer take her old perch on wheels and slam it into the wall.(ouch) Amy can breath a sigh of relief now that she is safely on a stable perch away from little hands.
The days of doing things "alone" are over, dad. It's team work all the way. So what if it takes you twice as long. Remember, "patience" is a virtue! Love you guys, grandma wright
Love these pictures!!! Love that little Magoo!!!!
It won't be long and we'll see Matthew wearing his tool belt and safety goggles working side-by-side with Dad in the workshot Dad built in the garage.
What a great job, and Daddy's little helper really added that special touch. I just LOVE this! I'm so happy to see your son taking after you and liking to do things around the house.
I bet Mommy is thrilled to have her two guys doing great work.
I love you all. Mom (Grandma Sue)
Tape measures are a fave at our house too! Even the kitties love it!
Great looking perch!
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