Never satisfied to simply sit in his rocking chair, Matthew insists on standing up and, as a result, taking precious years off the life of my heart & nerves.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2007
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February
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- Standard Baby Faces
- The Face
- If it's not one child...
- Baclofen seems to be working!
- Early morning pre-op
- Post-op
- Have you ever been this tired?
- Endoscopy update
- Endoscopy today
- Quick Baby Surgery Update
- Matthew's test results
- Mason Manning in surgery NOW
- Lincoln Carter getting a heart transplant tonight!
- Endoscopy scheduled
- Happy Valentines Day
- Matthew's Gastric Emptying Study
- Another test tomorrow
- The Las Vegas Coffee Party!
- He's in the Jail House now...
- Inseparable...
- Pious or Ghostly?
- A Head Above the Rest
- A special week to recognize people born with heart...
- Matthew's portrait
- Baby Mason Manning is born on Feb. 7th
- Just in case you Wondered...
- Home Improvement
- The Carnivor
- The Daredevil
- The Button Pusher
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February
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6 comments:
I can just hear it now ... you guys are probably wondering...
why are they taking pics of this kid while being a daredevil......
Mike was standing off to the side ready to catch him if he fell while I snapped the shots.
We will try to keep his last words on Earth from being, "Hey ya'll, watch this!"
I have observed our little hero putting a lot of pressure on his guardian angel lately.
Matthew is going through the "fearless" stage and he does wait to see a reaction, which is "everyone" in the room running for the "catch".
Does anybody wonder "how" Matthew got the bruise on his check. Follow him around and you' be amazed that is his only one.
When I gave him the rocking chair I had no idea it would become his play gymn. Just look at all the creative things he can do with just one chair. It doesn't show him standing up holding the back of the chair and rocking. Hopefully he will grow out of "this phase" very soon.
Love you our little dare devil.... grandma wright
If it makes you feel any better (which it will not) Ali has now learned to climb up onto the couch. Normally that's not such a big deal, but she finds great pleasure in standing on the couch and falling backwards. Now backwards typically means into the back of the couch, but she doesn't normally check her bearings prior to the plunge. She's fallen forward onto the floor more than once (Thank god it's carpeted), and last weekend she leaned forward and performed a roll where her head barely touched the floor and completely flipped onto her back. Every time we say "No Ali, we don't stand on the couch." She just puts a big grin on her face and giggles.
Moral of that somewhat long story: We feel your pain! I don't know how many heart beats I've skipped, but I want them back :)
I'm not even there and I'm reaching out to grab him. What a dare devil! He is definitely all boy. I guess I shouldn't say that. I bet Ali is doing the same thing. Is that true, Johnny & Cheryl?
I love you little climber.
Grandma Sue
We have found ourselves in similar "spots"... These kids are monkeys I tell you!
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