Good night Mom & Dad. Did you get enough pictures? OK, sweet dreams. Ya, I'm gonna lay down for bed right now. You can close the door...
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2006
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July
(40)
- Matthew still sleeps through the night in our bedr...
- Good night Mom & Dad. Did you get enough pictures?...
- They bought it. Fools! Now that they are gone, wha...
- I know! I'll crawl over this guard rail down to th...
- ...and escape right out that window there.
- ...Then I'll be free! Ha-ha-ha (devious laugh). Uh...
- ...Now I lay me down to sleep, I pray the Lord my ...
- Darn! That Daddy is really on top of things. I bet...
- One year ago today Matthew had his first open hear...
- One week "Post-Op".
- It didn't take long to realize the extent of lung ...
- Then, quite miraculously, Matthew's lungs began to...
- When we first brought Matthew home he was very fra...
- It didn't take long to see the wonderful results t...
- Today, Matthew's future looks very bright. He will...
- Matthew loves it when we read to him. This book pl...
- Mommy & Daddy will soon be running ragged because...
- Matthew's ability to crawl is "emerging". He can l...
- This outfit reminds me of my baby picture when I w...
- Matthew's reaction to the Chickenpox vaccine has m...
- No title
- Guess What! this picture was taken on 7-6-06 and ...
- Matthew is perilously close to running amok. He ha...
- Stick with me son, and I'll show you how it's done.
- No title
- Ever present, Quixa was "quick" to share her affec...
- Eventually Quixa just couldn't stand it anymore. S...
- Mommy & Matthew had a fun day of play and together...
- Matthew is beginning to get his feet under him whe...
- What could be motivating him to stand?
- ...His pretty Momma!
- A good game of Peek-a-boo will always elicit a smi...
- Terri loves to play with Matthew because he gets s...
- Happy 4th of July Everybody! We all went to Uncle ...
- What a difference a year makes! So much has change...
- Matthew wants to show you a new trick...
- With just a little help from Mommy & Daddy he has ...
- In addition to showing off his burgeoning standing...
- ...like grabbing noses!
- But, of course, his favorite place for his hands a...
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July
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2 comments:
Well, Michael, you built this a year ago for your precious little boy, and now he's standing up showing all of us how big he is. This is such a special, happy time and he is absolutely adorable.
Once he gets the crawling, walking thing down, it will be climbing over the top of the crib next. "Hi Mom & Dad, I thought you missed me, so I'm coming to sleep in your room."
He is so darn cute.
Love, Grandma Sue
well you were off to a good start, you know with smiling and wavin....but i really think that if you added in a fake little yawn..they wouldv eaten it up lil man.....and they would have never checked on you!!!...look at your face...you have " mom..dad, as soon as you shut that door i am going to be up to no good!!"
i promise you little man....fake yawn next time...you will accomplish your mission!!!! i love you!!!
tell me all about it!!!
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