This weekend we went to Beaver, Utah. The altitude made Matthew very cranky and lethargic. He really didn't seem to enjoy himself and it caused Terri some stress. His appetite, however, remained good.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2006
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June
(29)
- Matthew is doing much better. His fever has subsid...
- We had a very long weekend. Matthew spiked a fever...
- Today we all paid a visit to Matthew's Pediatricia...
- Dr. Tenby is delighted with Matthew's growth & wei...
- Terri continues to work on Matthew's upper body st...
- We have been encouraging Matthew to wave hello and...
- Sometimes when Terri & I praise him for waving he ...
- I got a strong sense of foreshadowing when I took ...
- You can only entertain a little fellow for so long...
- ...With his trunk wound up he starts the initial r...
- ...The full body swing completes the tear. Boys wi...
- At the end of the visit Matthew received two shots...
- "Hey Mom, what are you doing with that spoon? This...
- The trick is to sing to Matthew until he smiles. T...
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- After church this afternoon, Matthew enjoyed some ...
- Matthew got a bath this morning before Grandma Wri...
- Even though Mommy made sure the water was warm, Ma...
- Once the towel came out, the crying & fussing ceas...
- Today Matthew had an appointment with his Pediatri...
- Good News! Dr. Dezenberg was very pleased with Mat...
- Back at home, with the 2100 ft. Las Vegas altitude...
- This weekend we went to Beaver, Utah. The altitude...
- Matthew still doesn't have the suck-swallow-breath...
- Because of the altitude, Matthew took many naps. H...
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- Since Matthew is a "Tweener" (that is, between too...
- This is Peetie, our very senior cat. With Terri's ...
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June
(29)
1 comment:
What a wonderful Mom you are Terri. It would be so stressful to worry about his breathing because he is doing so well. For some reason, the altitude was harder for him this time. I'm so glad to hear that all was well once you got back to Las Vegas.
I love you all so much. Grandma Sue
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