Dr. Nakamura is probably the busiest doctor in town. As a result, we often spend up to an hour waiting in the exam room. It can be a challenge to entertain a baby for that long away from home.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2006
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May
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- Matthew has been added to the portrait gallery of ...
- His best Cheerleader, Terri encourages Matthew to ...
- Matthew has made some developmental improvements i...
- Have you ever been this wiped out? They say, "Play...
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- Terri has been urging me to let everyone know that...
- As the youngest member of the pack, Matthew is alw...
- On Tuesday we visited Dr. Gary Mayman, Matthew's C...
- After his weigh-in (18lbs. 6 ounces by the way) Ma...
- A well earned kiss for being such a good boy.
- I love this picture. Can't you just hear Matthew s...
- Dr. Mayman had great news. Matthew's heart & condu...
- Matthew is such a stinker when it comes to eating ...
- "Well, come on and try it. I Double-Dog dare ya!"
- "Oh no, what's this stuff?"
- "Yuck!"
- Matthew had a sleep study done last week and the r...
- This morning Uncle Keith and Daniel Brought over t...
- Matthew never tires of showing his Mommy what a bi...
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- Matthew never tires of his Jump-N-Go. He likes to ...
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- My best friend Johnny Hazelwood's parents, John & ...
- Happy Mother's DayMatthew treated his Mommy and hi...
- "Hi Mommy. I'm still waiting to see the Kangaroos."
- Grandma & Grandpa Wright reminisced with Grandma S...
- As always, Matthew sat next to me so we could visit.
- Aunt Kim had the perfect shoulder for napping afte...
- Happy 1st Birthday Matthew!!!After muc...
- Grandma Sue made a special trip from California to...
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- Matthew's cousin Daniel arrived early and helped w...
- This is Jaime & Keith Costa with their handsome so...
- This is Keith's mother, Grandma Reeva. She made Ma...
- Our neighbors Jaime and Rudy came to celebrate wit...
- Before the party reached its' climax, Terri gave a...
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- Had it been played, the theme music would have rea...
- Abbi's daughter Jayden was feeling left out so Mat...
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- Matthew's cake was colored yellow & blue. He had s...
- Matthew has been busy buying decorations for his p...
- Happy Birthday Matthew!!! Matthew is one year old ...
- Matthew was born on May 10th 2005. He was 8 weeks ...
- This picture was taken the day before we found out...
- Matthew's first open heart surgery was on July 28t...
- For Terri and I, the darkest days of our lives wer...
- After spending the first 5 1/2 months in the hospi...
- Matthew's 1st Christmas.
- After the shock of being told Matthew needed anoth...
- Minutes after Matthew got to recovery.
- Taking Matthew home From Stanford after his 2nd op...
- Today we paid a visit to Matthew's Pulmonologist D...
- As always, the first step in a check-up is to obta...
- Dr. Nakamura is probably the busiest doctor in tow...
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- Terri never lets an opportunity pass to work with ...
- Even with all her efforts, Matthew's progress at h...
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- Hey Mom, if you taunt me with your nose again...
- ...I'm gonna grab it!
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- Using Terri and the wall for support Matthew pract...
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- "I smell bacon!" This weekend we went camping with...
- While sitting down to breakfast, we put Matthew in...
- ...and again...
- ...and again. Someday Matthew will learn to put it...
- Here is a view of our little spot in Beaver. Telep...
- Ever vigilant, Quixa was always within a few feet ...
- Matthew continues the teething process. Terri felt...
- After the walks, ATV rides, cook-outs, and chasing...
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May
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