Aunt Gabrielle & Uncle Keith invited us to a late lunch at their house today. It was cold out so we bundled up Matthew in his "Christmas Story" outfit. We can't help but laugh at the jester hat.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2006
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February
(45)
- Matthew had an appointment with his cardiologist D...
- With clean bills of health in hand, our friends Tr...
- It's amazing how progress just sneaks up on you. A...
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- If Terri and I didn't tell you what a stinker he i...
- Here is a close-up of Matthew's toothy little smile.
- I just got this wide angle lens and couldn't wait ...
- Matthew loves to be in his bouncer. Terri says he'...
- Our dear friend Jerry, who is one of Matthew's Res...
- Aunt Gabrielle & Uncle Keith invited us to a late ...
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- As always, Uncle Keith was the first to greet Matt...
- Matthew was happy to see his Cousin Daniel.
- Matthew had so much fun playing with Mommy and all...
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- Auntie Kim bought this "Jeep" walker for Matthew t...
- Notice the intense concentration as if negotiating...
- Matthew is so proud of himself when Terri helps hi...
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- Terri snapped this picture of Matthew and I yester...
- Matthew came out on the patio with me in his swing...
- This was Matthew's first time in a highchair.
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- Matthew weighed in at 15 pounds 8 ounces this morn...
- After his weigh-in Matthew needed a new outfit. Lo...
- A fresh smile for a fresh outfit.
- This mischievous look comes from the satisfaction ...
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- This is a big day for Matthew. As Terri got him re...
- I'm so glad he doesn't know he will get two more s...
- Dr. Mayman measured Matthew's internal heart press...
- Matthew is at the age where he likes to garb thing...
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- Today was bath day for Matthew.
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- Matthew loves to be bundled up in his warm bath to...
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- Matthew gets "happy feet" when he gets excited. It...
- Here is Matthew, all clean, in his new outfit from...
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February
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1 comment:
He is just so darn cute in that outfit and his expression says it all. Looking at that adorable face makes all my cares go away. He definitely brightens every day.
Love, Grandma Sue
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