One of many blessings of being so young is having no concept or idea that another major surgery is just weeks away. Matthew's innocence and happy smiles help to ease the gravity of our immediate future.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2006
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January
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- Matthew was so happy to see his Mommy. I could hea...
- Terri does an excellent job of cheerleading for Ma...
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- Matthew loves playing "Patty-Cake" with his Mommy!
- Here, Matthew shows off his bubble blowing skills.
- Grandma Wright stopped by today to check on the bo...
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- When Terri had to fly to Chicago this weekend, the...
- After bath time, I taught Matthew how to run aroun...
- Even with all the household antics, Matthew came o...
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- In between feedings and breathing treatments Matth...
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- Matthew is still having trouble supporting himself...
- Here, though frustrated and uncomfortable, Matthew...
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- "Good morning my little man."
- Whatever Matthew doesn't drink from his bottle is ...
- This afternoon, Matthew got some swing time. He en...
- One day down and none the worse for wear.
- Matthew started the morning with some yummy apple ...
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- After several minutes of battling the spoon, we sw...
- After breakfast this morning, Matthew got a fresh ...
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- One of many blessings of being so young is having ...
- I hope that this photo is not an indicator of what...
- Terri and I just can't get over these chubby littl...
- Quite introspection.
- When Matthew gets excited, his little legs never c...
- After bath time, Matthew is nearly irresistible in...
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- Auntie Gabrielle comes over often in the morning t...
- Matthew & Uncle Keith had front row seats watching...
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- In these next four photos, Terri & Matthew share w...
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- Doesn't he look like a little scholar in this pict...
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- This is Jerry, one of Matthew's Respiratory Therap...
- Matthew recently started discovering his tongue. H...
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- "Dad, enough with the camera!"
- Tracy Butler, one of Matthew's PICU doctors, broug...
- The look on Matthew's face is absolutely classic!
- My High School Buddy's parents, John & Mary Hazelw...
- When I got home today, Matthew was just waking fro...
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- Forgive my indecision but I couldn't choose which ...
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- After a morning of play, Matthew got down to the b...
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- Matthew just loves his bouncing chair. Here, he lo...
- I'm so curious what he thinks of his reflection in...
- There is not much difference between the carnival ...
- Matthew was at the door waiting when I came home t...
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- Ladies and Gentlemen...The bib says it all.
- Look everybody...No hands!
- I think it's nap time.
- You may or may not notice but we got a new digital...
- Judging by the look, you would think Matthew just ...
- Bath Time!
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- We always wrap Matthew in a heated baby bath towel...
- There is nothing like fresh blankets and a fresh o...
- Terri says that feeding time is an important bondi...
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- When is the last time you woke up this happy witho...
- "Hooray for my morning diaper change!"
- Matthew likes to close his lips and blow bubbles.
- Here, Mommy sings the "Little Bunny Fufu" song to ...
- Matthew's brother Casey stopped by for a visit th...
- I received an E-mail today from our friend Robert ...
- This morning was tape change day. Here is a shot o...
- And now...Back by popular demand...The heart shape...
- Marci, one of our dear friends from Reno, came to ...
- Matthew had two doctor appointments today. The fir...
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- Dr. Tenby was pleased with Matthew's progress. He ...
- Matthew was quite cranky after having vaccinations...
- After viewing Matthew's heart on the Echocardiogra...
- Matthew struck this pose this morning after Mommy ...
- Matthew was ready to go Jogging with Mommy & Daddy...
- Happy New Year. This photo was taken at Circus Cir...
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January
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1 comment:
Janet said it beautifully. I only wish I was there daily to see this precious boy and watch him grow and thrive. That happy face just makes my day. I love you all.
Grandma Sue
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