First thing this morning I got Matthew dressed in his Christmas outfit.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2005
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December
(80)
- Matthew & Daddy on New Year's Eve.
- 13 1/2 lbs.! This morning was Matthew's weigh in a...
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- Matthew has just about outgrown his baby bathtub.
- Matthew and Mommy play Patty-Cake.
- Matthew and I watched a little TV after breakfast ...
- I love his happy little face.
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- Look how well he holds Keniki's "Hospital-made" ra...
- Aunt Gabrielle, Uncle Keith, cousins Dillon & Dani...
- Matthew sits with Aunt Gabrielle.
- Matthew can almost sit up on his own.
- Aunt Gabrielle and Cousin Daniel cuddle with Matthew
- These are the last two faces I see before going to...
- Matthew had a doctors visit today. Dr. Reyna is th...
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- Mommy checks Matthew's button prior to Dr. Reyna's...
- Matthew is getting very good at reaching for objec...
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- Matthew loves his bouncy seat. He kicks his legs a...
- Merry Christmas!Grandma Wright couldn't wait to gr...
- Uncle Keith and Aunt Gabrielle welcomed Matthew at...
- Mommy snuck in some cuddle time as well.
- Matthew and Aunt Gabrielle.
- These bells were attached to one of Matthew's gift...
- Grandma Wright and Daddy help Matthew open his gif...
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- Grandma Wright and Uncle Keith show Matthew his gi...
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- Uncle Keith & Aunt Gabrielle bought Matthew this b...
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- First thing this morning I got Matthew dressed in ...
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- Shortly Before opening gifts we snapped this pictu...
- Merry Christmas and God bless eve...
- The only thing missing from this picture is a TV r...
- Matthew is enjoying his play time. He sits up on h...
- After play time, Matthew slept...
- ...and slept.
- Here is a close-up that Mommy took today.
- Look how well Matthew can hold himself up! He is s...
- Matthew was featured in a local newspaper earlier ...
- These four darling pictures were taken this mornin...
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- Here is a photo showing two of several teeth comin...
- A month ago Matthew would cry inconsolably when pl...
- Mommy and I gave Matthew a bath this morning. Prio...
- The King Trio paid a pre-Christmas visit to Dr. Na...
- It warms my heart to see what a happy boy Matthew ...
- Matthew is developing his eye-hand coordination an...
- Another picture of Matthew grabbing at toys.
- Dr. Nakamura was very impressed with Matthew's pro...
- Here is an adorable photo Terri took prior to Matt...
- Matthew visited Dr. Dezenberg, his GI doctor, this...
- At his doctor visit this morning, Matthew weighed ...
- Here are two precious photos of Matthew that Terri...
- Here is picture number two.
- I just love this picture of Mommy and Matthew.
- I told Matthew that his girlfriend, Wendy, was com...
- This is Wendy who is one of Matthew's favorite nur...
- Wendy, knowing that we don't smoke, supplied the g...
- When we got home tonight I strapped Matthew to my ...
- Matthew with an adorable "Tummy-Time" pose. His Bo...
- Matthew on his way to another doctor visit. We wen...
- 11 pounds 11 ounces!!!!
- While giving Matthew a bath, we removed the old ta...
- Mommy holding Matthew in his teddy bear towel afte...
- Matthew's new G-Tube makes it less bothersome to b...
- Another "Tummy Time" photograph.
- Terri has been vigilant in working to strengthen M...
- Auntie Kim with Matthew. Just look at that smile.
- Since one of the milestones we are told to look fo...
- Grandma Sue flew into town this weekend. On Saturd...
- Grandma Sue and her boys.
- The King Trio prepares to decorate our Christmas tree
- Matthew was pearched like a "King" on a nearby tab...
- Daniel and I pose by the finished product.
- Matthew and Mommy sport his favorite ball cap.
- Auntie Gabrielle came over tonight to help Terri w...
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December
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2 comments:
Oh my, our darling baby boy's first Christmas. That's the best gift imaginable! Merry Christmas Matthew, Michael & Terri.
I love you,
Grandma Sue (Mom)
What a wonderful thing to see. Matthews first Christmas, and like his mommy....looking fantastic ( you do too Mike :-)
Wishing you a Holiday Sason filled
with Aloha !
Mele Kalikimakae
Hau'oli Makahiki Hou!
Love Aunty Keniki
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