Our nephew, Daniel, has been coming over during the day. He has been a big help to Terri. Daniel is so good with Matthew and watches out for him while Terri pumps or handles other tasks around the house.
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2 weeks before he was born ~ we did not know of his defect until he was 4 days old
4lbs 1oz ~ born at 32 weeks
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
Chest was open for 4 days ~ hence the gauze on top
Still on a ventilator (remained on vent for another few weeks)
Mask would assist him to breathe in and out
Waiting for the surgery team to take him off
And still he smiles...
Happy day ~ Look no oxygen!
So much to be thankful for!
One boy's long road to recovery. Matthew was born two months premature with a rare fourfold heart defect known as Tetralogy of Fallot with Pulmonary Atresia and MAPCA's, and Ventricular Septal Defect. He's had two open heart surgeries and will need additional heart surgeries in the future. To appreciate the absolute miracle of this "3 plus million dollar boy", you'd need to look into the "Archives" beginning after his first 9 hr open heart surgery at Stanford, August 2005.
First picture
2 weeks before he was born ~ we did not know of his defect until he was 4 days old
Day of birth ~ May 10th, 2005
4lbs 1oz ~ born at 32 weeks
Day of first surgery ~ July "05
"Unifocalization" ~ 9 hours by Dr. Frank Hanley
After first surgery
Chest was open for 4 days ~ hence the gauze on top
Chest was just closed
Still on a ventilator (remained on vent for another few weeks)
BiPap mask
Mask would assist him to breathe in and out
Getting ready for second surgery
Waiting for the surgery team to take him off
After second surgery
And still he smiles...
Leaving Stanford after second surgery
Happy day ~ Look no oxygen!
Happy Days
So much to be thankful for!
To view more pictures of Matthew while at Stanford, you can expand the year of 2005 by first clicking on the arrow, then the month. He was at Stanford from July thru September of 2005. Matthew was transferred back to Sunrise hospital where he stayed until the end of October 2005.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
His second open heart surgery at Stanford was March 16th of 2006.
We've been told he'll need a conduit change, on average, every three years. We are hoping technology will be on our side.
He's our amazing little soldier boy. Our miracle.
Blog Archive
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2005
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November
(66)
- Matthew had a very busy day today. He got a bath a...
- After his bath, we bundled Matthew in a warm towel.
- Matthew arrives at Dr. Dezenburg's office to get h...
- Matthew says, "Farewell" to his old G-Tube.
- Nurse Aubrey installs Matthew's new button.
- Here is a close-up of Matthew's new G-tube. There ...
- Matthew was such a trooper. He barely cried at all...
- Matthew and Mommy pose with Nurse Aubrey after his...
- Matthew enjoying a little swing time.
- Our Cardiologist, Dr. Mayman, told us today that M...
- At the end of "the afternoon blues" Matthew finall...
- Just when you thought it was safe to go back in th...
- After watching him for 24 hours Dr. Daugherty was ...
- Happy Thanksgiving!As you will see in the followin...
- Matthew with Aunt Gabrielle, Uncle Keith, and Gran...
- Matthew's favorite cousin Daniel never misses a ch...
- Matthew and cousin Misti met for the first time.
- Too much Turkey?With hearts and belies content, Ma...
- Matthew came home last night around 11pm. He woke ...
- With illness comes blood tests. After five painful...
- Terri and I finally calmed down enough to realize ...
- As the King Trio arrived at Sunrise this morning f...
- Poor Matthew had to don this dreadful hospital gow...
- Terri held and kissed Matthew prior to the Heart-C...
- When we first saw Matthew post-operation he was ve...
- After about five hours Matthew slowly began to wak...
- When Matthew first came out of surgery he had two ...
- The King Trio went over to Uncle Keith & Aunt Gabr...
- Our little scholar holding his bookAs many of you ...
- Matthew visited his GI Dr. Dezenburg today. Dr. De...
- Even after Matthew's heart surgery, his heart beat...
- I had to counsel Matthew not to whistle at the nur...
- Hey, this place smells like a hospital.
- While waiting for Dr. Dezenburg, Matthew spent som...
- Please forgive me. The picture posting utility has...
- This morning, Matthew was gripping my face as I sa...
- Terri sent me this picture the other day and I tho...
- Look how cute his little tongue looks!
- These next two pictures are of Mommy singing to Ma...
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- This is Wendy, one of Matthew's favorite nurses fr...
- Matthew and Daddy at Dr. Tenby's office.Matthew ha...
- Matthew holding his Rattle Custom made by Nurse Ke...
- Matthew swaddled after his bath.All of the sudden ...
- Matthew lost all interest in working out with Dadd...
- Matthew had a good time out back in his swing toda...
- Our nephew, Daniel, has been coming over during th...
- Daniel also helped me post our flags for Veteran's...
- The taste of Mommy's milk snaps Matthew right out ...
- No smiles today...
- As anticipated, Matthew is experiencing the effect...
- He's hardly six months old and I've already lost c...
- 10 Pounds, 3 Ounces!!! Hip Hip Hooray!!! Matthew w...
- Matthew was none too happy at bath time today. Mom...
- We kept a warm wash cloth on his chest so he would...
- Terri talking on the phone to Matthew's Great Gran...
- I had to hide the camera to get this shot. You can...
- While the bulk of Matthew's feeds are delivered vi...
- Family friend Aracely Escalona came by to see Matt...
- Matthew and Aracely lock eyes.
- Matthew's has a very expressive face and he change...
- This afternoon Matthew was very smiley during his ...
- Casey has been coming over everyday to be with Ter...
- Matthew's brother Casey takes all of the super clo...
- Auntie Kim has been coming over every night after ...
- Terri just called me after Matthew's GI appointmen...
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November
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3 comments:
Daniel is the best. I must admit he is better at changing Matthew's "blowouts" than I am. I almost had to arm wrestle him just so I could hold Matthew.
Terri told me he loves the high tech diaper pail and loves to "dump the diapers".
He also gives Matthew his breathing treatments....
keeps in bouncing in his chair...
he's very good!!
I love having Daniel around....
what a great cousin!
Terri
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